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At 7:46am on February 17, 2013, Deb Robins said…

Hi Michael,

Please visit duchennefoundation.org.au  and grab a copy of Jos Hendricksen's, Psychology of Duchenne MD.  If you came to Ridingthewave2012.org.au you probably have a copy, but if not we have new stocks and there's a lot of information in it about cognition and learning, Jos being a neuropsychologist for boys with DMD, of great renown. We are also working on an educational pack for the Australian context as our next publication. 

At 7:50am on May 21, 2011, Andrea Cleary said…

I'm so sorry that you have to join the rest of us here, but we can and do support eachother, and exchange invaluable information.

Gradually your tears of grief will turn to tears of acceptance so that all you have left will be the love for your boys. Reach out for a hand when you need it.


Montreal, Canada


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