I recently switched my son Danny (6) to Deflazacort. Due to extreme weight gain 25+ pounds in a few months. He started the Deflazacort two weeks ago. He went from 15mg of Prednisolone to 18mg of…Continue
I am the proud Mama of my 6 year old son Danny. He suffers from the monster known as Duchennes. I am a Mom on a mission and seriously taking it minute by minute, hour by hour, & day by day....
About my family:
Danny (6) is my son and the light of my life. Doug (32) is Danny's Daddy and the love of my life. We also have a boxer Suki (1), a cat Bozley (8) and a tortise Turdmeister (20+). I am also blessed with an amazing Mom Laurie, Dad Mike and Brother Joey. I also have gained a lot of great family through Dougie and our amazing friends and support group. All in all I am lucky in life and love :)
Name(s) of child(ren)/individual(s) with Duchenne:
Where is West Allis in relation to New Richmond WI, that's where we are at. Sawer is 9 and was Dx in 2008, seems like yesterday at times. Sawyer is one of the "lucky ones"... he is currently in the Serepta Clinical Trail in Columbus Ohio.