"Yes! Yes! Yes! I've never read such a spot on review of DMD life. We do have the sweetest children on the planet. And thank you for your insight into reality and how to cope. I look forward to more.Melissa C. for Keith and Michael."
Keith and Michael are 6 yrs old. Their genetic mutation is a duplication of exon 8,9. Their father and I have decided not to administer steroids as a therapy. There may be a place for them if any upcoming trials need children with no prior steroid use. Let us know.
Name(s) of child(ren)/individual(s) with Duchenne: