Melissa
  • 35, Female
  • Arabi, LA
  • United States
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Melissa's Friends

  • alexandra grau quinteros
  • Rebecca Swartz
  • Joyce Bergeron
  • Kimberly Damron
  • Michelle LB
  • Erin
  • Karen Jones
  • irishgirl
  • Anita Bullers
  • Mary Lynn Burns
  • Jessica Rownd
  • Lori Ware
 

Melissa's Page

Profile Information

About me:
My name is Melissa and I'm Aunt and Nanny to the most amazing little guy in the world name Brogan Patrick Burns. He stole my heart the day he was born and he's had it ever since. He's 5 years old and was diagnosed with DMD at the end of 2007.
About my family:
There's me and my mom and dad (Mary Lynn and Earl), my older brother Clayten, his wife Michelle, and their two boys Brogan (5, dmd) and Liam (2)
Name(s) of child(ren)/individual(s) with Duchenne:
Brogan Patrick
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Arabi, LA

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Comment Wall (10 comments)

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At 2:42am on June 12, 2010, Heather Brian said…
Melissa... My sister Monica also helps me with my son Josh, he is 9 and has DMD. Sisters like you and her are the only reason mom's like me can get up everyday and face it with a smile. Know that you are special, wonderful, and amazing and without you, your nephew would be missing a huge piece of love and happiness. Thank you!
At 1:53pm on April 3, 2009, Karen Jones said…
Melissa,
How's Brogan doing? As you know, your nephew and my son have the same deletions. I hope all is well.
Does Brogan see Dr. Wong? I hope so she wonderful.
Take care, Karen
At 3:57pm on February 8, 2009, Kippi Harraid said…
Melissa, Thank you for the welcome! I was involved with the PP many years ago - really at it's beginning. My son will be 23 in May. God bless you and that sweet nephew. What precious pictures. I'll try to upload some of my children soon.
At 7:18pm on December 10, 2008, barbara stringer said…
Hi Melissa,
What a great aunt you are, and I can see what a darling boy little Brogan is. No wonder you are crazy about him. Both of you are lucky to have such a wonderful relationship. I wish you all well. Barbara
At 11:23pm on October 26, 2008, Erin said…
I enjoyed meeting you yesterday. We had so much fun! Thanks for the ideas with the crafts. The kids a fun making the banner. I kept it to use for next year!
At 4:15pm on October 6, 2008, Lori Ware said…
Hey Melissa,
Are you all coming to the Tailgate at LSU for coach for the cure? There will be a bunch of us! If you are, let me know what T-shirt sizes you need!
Thanks! Lori
At 4:49pm on September 29, 2008, Joyce Bergeron said…
Hi Melissa, I live on Terry Drive in Arabi. Where does your nephew attend school. Who is his doctor (MD)? How did you family find out his diagnosis? My grandson was a toe walker, went to gastro doctor, liver enzymes high, then ran CK level (muscle enzyme) was 15,000!! Doctors in S. Florida diagnosed as Becker MD but went to Nationwide Children in Ohio (Jerry Mendell Clinic) and they changed to Duchene. My grandson is still walking, however, in school he has started to use a motorized chair. He tires easily. Would love to know more about your nephew and I would be glad to share about by grandson. Networking helps. Joyce
At 11:42am on September 29, 2008, Joyce Bergeron said…
Melissa
I am the maternal grandmother to Wil, age 8. I live in Arabi but he lives in South Florida. Does your nephew live close by? Joyce
At 11:14am on September 20, 2008, Karen Jones said…
Melissa,
My son will be 13 in October. He is still walking and doing pretty well. I hope your nephew is doing well. You can ask me anything I will be happy to answer any questions you may have. Karen
At 8:49am on August 24, 2008, irishgirl said…
Hi and welcome. You caught my eye as I, too, have a son named Liam. He's was diagnosed with MD two months ago and he will be nine this November. DOes the gray cloud overhead ever go away when you get a diagnosis like this???
Noreen - irishgirl
 
 
 

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