Megan Knight
  • Female
  • Scottsburg, IN
  • United States
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Megan Knight's Friends

  • Trinh Nguyen
  • Lisa Crawford
  • Leeandra Arhdeacon
 

Megan Knight's Page

Latest Activity

Megan Knight commented on PPMD's blog post Oh Brother
"I thank you for this.  I go through this thought process constantly.  We got the diagnosis, start to figure it out and then kindergarten started and I am trying to deal with all the cognitive issues and helping learn to cope with this and…"
May 8, 2013
Megan Knight posted a photo

Photo uploaded on May 14, 2012

Sent from my Verizon Wireless 4G LTE DROID
May 14, 2012
Megan Knight shared a profile on Facebook
Feb 15, 2012
Megan Knight joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Dec 22, 2011
Megan Knight commented on PPMD's group Duplications
"My son, who is 4 almost 5, has duplications on exons 56-63.  He is still doing very good with running and other things which I suppose is expected at this age.  I always wonder how well other kids walk around this age…"
Nov 6, 2011
Megan Knight joined PPMD's group
Nov 6, 2011
Trinh Nguyen and Megan Knight are now friends
Aug 30, 2011
Megan Knight replied to Trinh Nguyen's discussion Prednisolone / Methylprednisolone
"Did your doctor prescribe anything to protect your son's stomach while he is taking steriods everyday?  My son takes Prednisolone everyday and ranitidine, which is a proton pump inhibitor that is supposed to protect his stomach while…"
Aug 29, 2011
Megan Knight joined PPMD's group
Aug 20, 2011
Megan Knight and Leeandra Arhdeacon are now friends
Aug 1, 2011
Megan Knight commented on Lisa Jones's group Cincinnati Children's Hospital Medical Center
"So excited.  Found out that Liam has gotten appointments to go to Cinci Sept 20-Sept 22.  So glad to be going somewhere that KNOWS about duchenne.  Hopefully Liam starts getting the care he really needs."
Jul 31, 2011
Megan Knight joined Lisa Jones's group
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Cincinnati Children's Hospital Medical Center

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.See More
Jul 31, 2011
Megan Knight joined Danielle Bath's group
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Duchenne Smiles

A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.
Jul 31, 2011
Megan Knight replied to Kira Mullaly's discussion Severity of DMD?
"Terry-            Liam started wearing AFOs during the day and I really hated them because they really limited him in everything he did.  He couldn't run, hardly climb, or get up.  We…"
Jul 9, 2011
Megan Knight replied to Kira Mullaly's discussion Severity of DMD?
"Terry and Tammy-    My son has is 4 and although like you said he lacks at running and jumping the same as other kids he is very athletic and does a very good job.  He can actually jump with both feet off the ground and runs a lot…"
Jul 7, 2011
Megan Knight replied to Lisa Anderson's discussion OCD
"Hello I usually don't talk much here as absorb what everyone is saying and take my support that way but... Liam is 4 and has OCD tendencies.  We haven't looked to get anything done because it is not that bad.  His dad gets…"
Jul 2, 2011

Profile Information

About me:
I am almost done with RN school, and working part time at a longterm healthcare facility.
About my family:
It is now the three of us trying to help each get through. We are doing relatively well and adjusting to our new lives. We do as much as we can together, and have as much as fun as we can by watching movies, going to the park, and hanging out together and with friends.
Name(s) of child(ren)/individual(s) with Duchenne:
Liam
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Scottsburg, IN

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Megan Knight's Blog

Letter I recieved from my congressman about funding

Posted on June 23, 2011 at 4:27pm 3 Comments

young_letter.docx

 

I thought that you might want to see what my "wonderful" congressman said about funding for research when I sent him the letter from ppmd.

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At 5:30pm on March 28, 2011, Lisa Crawford said…
Hi Megan, look forward to talking to you. I live in Indiana also & have an 8 yr. old son who has DMD.
 
 
 

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