Go to www.towardsabrighterfuture.org.au for news of our national neuromuscular conference in Sydney, Feb 26-27, 2010. Draft program is online now, including concurrent breakout sessions. Share this update with affected persons and family as this is a strong international program of presenters. See you there?
Yes I will be attending along with our medical speaker, Helen Posselt. She is the UPPMD educational advisor and creates most of PPMD educational videos. Because of her seating and advice, my 21 yr old son had never had spinal surgery and is still not needing bi-pap./night ventilation although he has zero dystrophin and has been non-ambulatory from 9 yrs. Dr Bach, Dr Biggar and all the European speakers are the best in the world too in their own fields. If you and medical representatives can make it, it will be very beneficial I promise you.