May
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  • Selangor
  • Malaysia
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  • Deb Robins

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About me:
Hi, my name's May. i'm a mother of 2 wonderful boys & i would like to be part of the community to share, encourage & to go on the tough journey together with other parents.
About my family:
I have 2 boys. My elder one has DMD & my younger one is normal. Since the diagnosis, we have been coping with the pain but life has to go on. By God's strength & grace, we can perservere on
Name(s) of child(ren)/individual(s) with Duchenne:
Isaac
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Selangor

Comment Wall (3 comments)

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At 8:53am on December 30, 2009, Deb Robins said…
Go to www.towardsabrighterfuture.org.au for news of our national neuromuscular conference in Sydney, Feb 26-27, 2010. Draft program is online now, including concurrent breakout sessions. Share this update with affected persons and family as this is a strong international program of presenters. See you there?
At 6:23pm on January 3, 2009, Deb Robins said…
Hi May,
Yes I will be attending along with our medical speaker, Helen Posselt. She is the UPPMD educational advisor and creates most of PPMD educational videos. Because of her seating and advice, my 21 yr old son had never had spinal surgery and is still not needing bi-pap./night ventilation although he has zero dystrophin and has been non-ambulatory from 9 yrs. Dr Bach, Dr Biggar and all the European speakers are the best in the world too in their own fields. If you and medical representatives can make it, it will be very beneficial I promise you.
At 11:43pm on January 2, 2009, Deb Robins said…
Please share information about this upcoming DMD conference in our region with your networks? http://tinyurl.com/bangaloreFeb09

best regards

Deb
 
 
 

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