Widowed, live alone disabled due to lung disease with limited mobitility. Interested in developments with MD and am interested in helping others deal with everyday living
challenges with a special child. Be there for support, someone to talk to and overall morale buster.
About my family:
One daughter married with three grandsons none have Duschene. My only son Todd had duschene muscular dystropyhy and fought every day and had the greatest life he could within his limitations. My son died at age l5 in l995, No day goes bad that I don't remember him. I lived in the Arctic during my son's life and was required to do my own lobbying and educting others. My son Todd was a very special person and would like to share what we learnt from each other.
Name(s) of child(ren)/individual(s) with Duchenne:
1 deceased at age 15
Peace River AB
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