Hi, you alredy know my name so i'll skip that. Im 23 years old from southern Sweden with Duchenne, they found out when I was a small 4 year old. Since then I've been fighting against the disease and gone through alot of things, hard stuff. Even though, I have'nt lost my humor or brightness!
I have bad days like everyone else, but I cannot just give up.
Im still always the loving and caring man only a little less strong!
About my family:
Very supportive all the way, also my two sisters have helped me alot. We're a strong family and we never back down for setbacks.
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
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Glad to hear that you have not lost your spark. I hope you can inspire some of the parents of the little ones just diagnosed. We are in the middle somewhere, as Simon is 11.5. Still walking and dancing with a big smile, and told me the other day that he was going to appreciate every moment, because he knew that one day he would not be able to walk. That"s hard to hear, but it isn"t the end of the world, as you so valiantly demonstrate. Thank you.