I am Mum to James aged 12 how suffers from. Duchenne Muscular Dystrophy. Diagnoised at aged 6. I work as an Administrator for local government - part time.
About my family:
I live with my Husband Steve and son James. I have two step sons aged 25 and 28 Chris and Anthony. I have a fantastic network of friends and family and James has a really close relationship with my Mum and Dad.
Name(s) of child(ren)/individual(s) with Duchenne:
James William Smith
Age(s) of child(ren)/individual(s) with Duchenne:
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Hi Mary, I just posted last night on the ankle fracture discussion. Would love to hear how your son is doing and compare to how my Kevin is doing since they just fell around the same time. What actions are you taking? It would help to hear from you. I also sent a message to Prasad S. who posted a year ago to see how his son is now doing. I know him from New Jersey but haven't seen him in a while. I'll let you know when I hear. Hope to hear from you soon. Patti (firstname.lastname@example.org)
I agree, I am not a carrier. I do beilieve it is not your fault that your child has this disease... Life was already planned we did not plan it. Think of all the ignorance in this world. Better , yet think about how your child has educated the ignorant world at points in his life.