My name is Marilyn. I am happily married to my dh of over 10 years. I have one son who is the joy of my heart. I enjoy my beautiful russian blue cat named Katie. I am retired but stay busy.
About my family:
My husband (2nd) is a wonderful person. He is a caregiver to my son. We have 2 three bedroom apartments that connect at the dining room... my son has his own apartment with the privacy he needs. The three of us go out to dinner and to movies or events in the community. Duchenne has not slowed us down.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
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our son Ofir is 26 just like Jason. He is living in his own flat (next to ours) and enjoing his life. He is studying at the local university, but spends most of the time on internet. Luckily we live in a European welfare-state, so that Ofir can afford to have carers round the clock enabling him to lead an almost independent life.