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Marilyn Ash
  • Female
  • Prior Lake, MN
  • United States
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Marilyn Ash is attending PPMD's event
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PPMD's Every Single [One] Tour: Iowa City, IA at Iowa City, IA

April 1, 2017 all day
Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care…See More
Feb 24
Sai Chand. Gurujala left a comment for Marilyn Ash
"Hi Marilyn, My nephew has duplication of exons 2-4. Now he is 7.5 years"
Feb 10
Marilyn Ash commented on PPMD's group Duplications
"Friend me on Facebook and I can add you. I like Duchenne Under Ten, DMD moms, and DMD Army. There's another one that I like but I can't recall the title. It's really long. How old is your son?"
May 10, 2016
Marilyn Ash commented on PPMD's group Duplications
"I'm still here, too. I usually participate more on the Facebook groups. It's been a year since dx and it still seems like we just got the phone call yesterday. Any Dup2 kiddos out there?"
May 10, 2016
Marilyn Ash commented on PPMD's group Duplications
"Hi!  My son is 3 and was just diagnosed with DMD.  He has a duplication of exon 2.  He is still walking and not showing any signs/symptoms.  Thankfully!  My brother had DMD and so I pushed for testing recently.  Our…"
May 19, 2015
Marilyn Ash joined PPMD's group
May 19, 2015
Marilyn Ash is now a member of PPMD Community
May 13, 2015

Profile Information

About me:
I'm a DMD carrier and my brother passed in 2005. I live in MN with my husband and 3 children. My youngest son was just diagnosed with DMD in April. He has a duplication of Exon 2.
About my family:
My 3 year old son was recently diagnosed with DMD. We are still waiting for genetic testing to return; however, we were able to find out that my brother had a duplication of exon 2. We are assuming my sons DMD will be similar to this, but anxiously waiting for the final results. We are hoping for the best of course!
Name(s) of child(ren)/individual(s) with Duchenne:
Tyler
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Prior Lake
State:
Minnesota

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At 9:04am on February 10, 2017, Sai Chand. Gurujala said…

Hi Marilyn,

My nephew has duplication of exons 2-4.

Now he is 7.5 years

 
 
 

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