Maria Cutrufello
  • Female
  • Egg Harbor Township, NJ
  • United States
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Maria Cutrufello's Friends

  • Dina
  • Paul Johnson

Maria Cutrufello's Page

Profile Information

About me:
I'm a mother of 2 children, Lauren (17) and Alexander (13) and three step children. We live in South Jersey and I work
for Harrahs Entertainment as a Purchasing Agent.
About my family:
My son Alex has DMD and he is currently on the trial medicine PTC124. His Doctor is Dr. Fi nkel at Childrens Hospital.
Name(s) of child(ren)/individual(s) with Duchenne:
Alex Pearse
Age(s) of child(ren)/individual(s) with Duchenne:
Egg Harbor Township, NJ

Comment Wall (12 comments)

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At 5:44pm on June 1, 2010, nbpendley said…
Hello - I just read a couple of your posts in discussions on supplements and I am curious if you are still using the same mix. Thanks
At 2:19pm on April 22, 2010, Dina said…
Sounds great.
Talk to you soon.
At 12:26pm on April 22, 2010, Maria Cutrufello said…
Hi Dina
That would be great, I would love our sons to get to know each other. He was ok with the transport chair but once he got into the power wheelchair he did great!! Was able to keep up with his friends, it was like a new world for him.
My weekends are mostly all booked up with Holy Communions, Graduations and Weddings until June. If June is good for you let me know and you and your family can come over and let the boys get to know each other.
Keep in touch
At 8:16am on April 21, 2010, Dina said…
I would really like my son to meet your son one of these days. He is 11 years old now. We just started using a transport chair for school this year. I was wondering how the adjustment to the chair went for your son, as far as school goes. Hope to talk to you soon.
At 9:02am on April 14, 2010, Maria Cutrufello said…
Hello, How are you doing? we are doing good!!
Hope all is well
At 12:33pm on April 12, 2010, Dina said…
Just saying hello.
At 11:28am on September 8, 2009, Dina said…
Yes! I did see him. I happen to catch the end of his time on the air. He didn't think those Chuck Norris jokes were funny, me neither. Anyway, you were on tv too. I had a feeling it was you even though i never met you. Your son is cute and did a great job! As for pt we stopped going for the summer because we have a pool. Plus it was too much money for us to continue right now. Ann told us that they may be coming up with a program where parents can take their children in the pool and to keep checking in about that. My son got his first transport chair from mda the other day. He is using it for long distances for now. Well great talking to you maybe we can get together one day while the boys are in school.
At 7:31pm on September 5, 2009, Dina said…
Hi! Just checking to see how you are doing? School is starting soon for my kids how about you? Well talk to you later.
At 9:28am on August 18, 2009, Dina said…
That sounds good! I am thinking about doing the Muscle Team Challenge. I know you have done that one. It would be great if our sons could become friends.
talk to you soon.
At 12:58pm on August 10, 2009, Paul Johnson said…
Hello Maria... we 'met' at the Muscle Team Challenge - or at least I recognize your name from it, my sons were the inspiration for our MTC team - Team Elliott & Henry. Elliott is also in the PTC124 study with Dr. Finkel - he'll be having the 9 month biopsy in September - boy these 9 months seem like forever. Has Alex completed the tril at this point and moved on to the extension study?

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