Hello! My name is Margarita, I live in Ukraine, Kirovograd
About my family:
. I have a son, who is ill with Duchenne. He is now 9 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition.
I want to participate in different Parents’ Projects for Muscular Dystrophy online. There may already be drugs that can cure my son. Please help us, because we are lonely here with our problem.
Name(s) of child(ren)/individual(s) with Duchenne:
Yashchenko Daniil
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Kirovograd
State:
Ukraine
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Thanks for your kind words ,in Israel do they hv any treatment for our kids please let me know,,,bcz my son is autistic too ,he has no sense for himself ,,,I am scared with this situation..Please help me .
I have not received your email yet. I will continue to look for it and will give it to you again. ckeskeny@gmail.com I hope you will write me again. Thank you.
I have 2 friends that live by me from Ukraine. I am in Alberta, Canada. Her parents are going back home at the end of the month. Please email me jessicalynstevens@gmail.com anytime. I will ask the girls where they are from. They go home once every 4 years.
I am so glad you wrote. This is a very good community, you will find a lot of support here. My son is now 31 years so and is doing ok. Have you ever research France for their research? I have heard they are doing some amazing things I have heard. I'm so sad to hear you have to travel so far to get any help. We are lucky in the US to have so many resources so close by. One of son's nurses is from the Ukraine and has been with us for several years now.. We love her very much. My son is not on any special medicines at this time. He is on a ventilator to help him breath. My personal email is ckeskeny@gmail.com. Best wishes for you and your family. Please email at any time and I will write you back. Much love, Carol .
At 9:37pm on September 16, 2017, Jay Griffin said…
Jaygriffin@ctc.net
At 9:36pm on September 16, 2017, Jay Griffin said…
Email me atjaygriffin@ctc.net
At 10:00am on September 7, 2017, Jay Griffin said…
Are on Facebook messenger
At 10:00am on September 7, 2017, Jay Griffin said…
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my email Id is Suruchiyadav983@gmail.com....Please do reply.
Hi margareta
Thanks for your kind words ,in Israel do they hv any treatment for our kids please let me know,,,bcz my son is autistic too ,he has no sense for himself ,,,I am scared with this situation..Please help me .
I have not received your email yet. I will continue to look for it and will give it to you again. ckeskeny@gmail.com I hope you will write me again. Thank you.
I have 2 friends that live by me from Ukraine. I am in Alberta, Canada. Her parents are going back home at the end of the month. Please email me jessicalynstevens@gmail.com anytime. I will ask the girls where they are from. They go home once every 4 years.
Jessoca
Dear Margarita,
I am so glad you wrote. This is a very good community, you will find a lot of support here. My son is now 31 years so and is doing ok. Have you ever research France for their research? I have heard they are doing some amazing things I have heard. I'm so sad to hear you have to travel so far to get any help. We are lucky in the US to have so many resources so close by. One of son's nurses is from the Ukraine and has been with us for several years now.. We love her very much. My son is not on any special medicines at this time. He is on a ventilator to help him breath. My personal email is ckeskeny@gmail.com. Best wishes for you and your family. Please email at any time and I will write you back. Much love, Carol .
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