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Margarita Yashchenko Female Kirovograd Ukraine: Favorite

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About my family:: . I have a son, who is ill with Duchenne. He is now 9 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition.
I want to participate in different Parents’ Projects for Muscular Dystrophy online. There may already be drugs that can cure my son. Please help us, because we are lonely here with our problem.

At 8:57am on January 9, 2018, suruchi yadav said…: Hi Margarita
my email Id is Suruchiyadav983@gmail.com....Please do reply.

At 1:00pm on January 7, 2018, suruchi yadav said…: Hi margareta

Thanks for your kind words ,in Israel do they hv any treatment for our kids please let me know,,,bcz my son is autistic too ,he has no sense for himself ,,,I am scared with this situation..Please help me .

At 12:52pm on January 4, 2018, Carol Keskeny said…: I have not received your email yet. I will continue to look for it and will give it to you again. ckeskeny@gmail.com I hope you will write me again. Thank you.

At 11:02pm on December 10, 2017, Jessica Stevens said…: I have 2 friends that live by me from Ukraine. I am in Alberta, Canada. Her parents are going back home at the end of the month. Please email me jessicalynstevens@gmail.com anytime. I will ask the girls where they are from. They go home once every 4 years.

Jessoca

At 1:54pm on December 10, 2017, Carol Keskeny said…: Dear Margarita,

I am so glad you wrote. This is a very good community, you will find a lot of support here. My son is now 31 years so and is doing ok. Have you ever research France for their research? I have heard they are doing some amazing things I have heard. I'm so sad to hear you have to travel so far to get any help. We are lucky in the US to have so many resources so close by. One of son's nurses is from the Ukraine and has been with us for several years now.. We love her very much. My son is not on any special medicines at this time. He is on a ventilator to help him breath. My personal email is ckeskeny@gmail.com. Best wishes for you and your family. Please email at any time and I will write you back. Much love, Carol .

At 9:36pm on September 16, 2017, Jay Griffin said…: Email me atjaygriffin@ctc.net

At 10:00am on September 7, 2017, Jay Griffin said…: Are on Facebook messenger

At 6:22am on January 22, 2017, Jay Griffin said…: Hi. Our son is 7 and he has Duchenne. We are in the United STATES. We can skype a little early here. How is he doing?