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Margarita Yashchenko
  • Female
  • Kirovograd
  • Ukraine
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  • Jay Griffin
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Latest Activity

Margarita Yashchenko favorited Margarita Yashchenko's profile
Mar 22
Jay Griffin left a comment for Margarita Yashchenko
"Hi. Our son is 7 and he has Duchenne. We are in the United STATES. We can skype a little early here. How is he doing?"
Jan 22
Margarita Yashchenko is attending PPMD's event
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FACES of Nebraska - Kickoff Meeting at Lincoln, NE

April 3, 2016 from 1:30pm to 5pm
As part of our Every Single [One] Tour and to expand on the success of PPMD’s FACES program, we will launching a new FACES group in Lincoln, Nebraska in early April. This will give us an opportunity to connect the large number of families in the area who are living with Duchenne, as well as provide updates on research, advocacy,…See More
Apr 1, 2016
Margarita Yashchenko is attending PPMD's event
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2016 Annual Connect Conference at Orlando, FL

June 26, 2016 to June 29, 2016
Registration is now open for PPMD's 2016 Connect Conference!Parent Project Muscular Dystrophy's Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than…See More
Apr 1, 2016

Staff
Abby Bronson left a comment for Margarita Yashchenko
"Dear Margarita: Thanks so much for writing about your son Yashchenko.  It sounds like you are doing the right thing by going to Israel for medical care, although that must be awfully burdensome. Is your son on steroids? While that is a medical…"
Mar 30, 2016
Margarita Yashchenko is now a member of PPMD Community
Mar 28, 2016

Profile Information

About me:
Hello! My name is Margarita, I live in Ukraine, Kirovograd
About my family:
. I have a son, who is ill with Duchenne. He is now 9 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition.
I want to participate in different Parents’ Projects for Muscular Dystrophy online. There may already be drugs that can cure my son. Please help us, because we are lonely here with our problem.
Name(s) of child(ren)/individual(s) with Duchenne:
Yashchenko Daniil
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Kirovograd
State:
Ukraine

Comment Wall (2 comments)

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At 6:22am on January 22, 2017, Jay Griffin said…
Hi. Our son is 7 and he has Duchenne. We are in the United STATES. We can skype a little early here. How is he doing?
At 9:50am on March 30, 2016,
Staff
Abby Bronson
said…

Dear Margarita: Thanks so much for writing about your son Yashchenko.  It sounds like you are doing the right thing by going to Israel for medical care, although that must be awfully burdensome. Is your son on steroids? While that is a medical decision the trust must be made by your physician it is considered to be the standard of care. I wish I could say that American Doctors had a cure, but we don't. We (and the EU too) are testing many therapeutics but nothing has been approved so far. The PPMD website lists of all the compounds the are being tested on our website and try to keep it as up to date as possible, so that is a good resource for you.  You should join and you can keep updated on anything new.  TREAT-NMD http://www.treat-nmd.eu is also a great resource, more EU focused and may have some support that is closer for you. Our annual Connect Conference, http://community.parentprojectmd.org/events/2016-annual-connect-conference is the largest  family and patient conference and will be streamed online. Watch the website for more details.  Also, there are many very active Facebook groups that focus on DMD and could be a good resource for you. Many families ask questions and much good information is exchanged. Please let me know if you have any other specific questions and please stay in touch! - Best,

Abby

 
 
 

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