Manu Gambhir
  • Male
  • Philadelphia, PA
  • United States
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  • Gail D. McVicker
  • Jacobs Mommom

Manu Gambhir's Discussions

Going to the bathroom on a plane

Started this discussion. Last reply by Manu Gambhir May 5, 2014. 2 Replies

 

Manu Gambhir's Page

Latest Activity

Manu Gambhir replied to Manu Gambhir's discussion Going to the bathroom on a plane
"Just ordered it. Thanks!"
May 5, 2014
Andrea Cleary replied to Manu Gambhir's discussion Going to the bathroom on a plane
"? http://en.wikipedia.org/wiki/Stadium_buddy ? attached to a leg bag perhaps."
May 5, 2014
Manu Gambhir posted a discussion

Going to the bathroom on a plane

I am travelling with my son this Thursday on a 4 hour flight. It's become much harder for him to walk recently and taking him to the bathroom on a plane is risky and difficult. Does anyone know of a device that can be worn during a plane flight which I can dispose of in the bathroom and attach another one? See More
May 5, 2014
Manu Gambhir replied to Manu Gambhir's discussion Frequency of Physical Therapy - Debate with insurance company
"Thank you for the useful responses. Much appreciated."
Feb 23, 2014
danielle replied to Manu Gambhir's discussion Frequency of Physical Therapy - Debate with insurance company
"this is a battle most of us parents fight. my son is 8 and he does pt in school once a week and outside of school once a week. the actual pt doesnt think that it is beneficial for my son to do more than 45 minutes a week in pt. he is now in a wheel…"
Feb 21, 2014
David replied to Manu Gambhir's discussion Frequency of Physical Therapy - Debate with insurance company
"Good luck... It is a battle I too fought years ago but lost. My son still received frequent pt but through the school district APE program not actual PT"
Feb 20, 2014
Manu Gambhir posted a discussion

Frequency of Physical Therapy - Debate with insurance company

My son is now 12 years old and ambulatory. He has been receiving PT from a professional 5 days per week for the past 5 years. The insurance company has now decided that 1 to 2 days per week is sufficient and there is no "medical necessity" for 5 days per week. I have an opportunity to appeal that decision and am trying to put together a comprehensive set of information from publications and anecdotal data that shows that 5 days per week is beneficial to the health of the 12-year old DMD patient…See More
Feb 19, 2014
Gail D. McVicker left a comment for Manu Gambhir
"Hi Manu,I am reaching out to you and other Duchenne families in PA so that we can have more backup in asking Congress to support DMD interests. I live in Pottstown, PA and have two grandsons with Duchenne. I am sending out the following reminder to…"
Feb 16, 2012

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Yuva
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Philadelphia, PA

Comment Wall (2 comments)

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At 11:58pm on February 16, 2012, Gail D. McVicker said…

Hi Manu,
I am reaching out to you and other Duchenne families in PA so that we can have more backup in asking Congress to support DMD interests. I live in Pottstown, PA and have two grandsons with Duchenne.
I am sending out the following reminder to maximize constituent activity for PPMD's Advocacy effort coming up in two weeks. We will increase our chances to get government support for our boys by sharing how Duchenne has touched our lives. You won’t even have to leave your home.
Gail
If you can't attend PPMD’s 2012 Advocacy conference in Washington, DC, there other ways to to advocate and help get government support for DUCHENNE. To date, we only have 2 or Pennsylvania’s 19 Congressional districts backed up by actual Duchenne constituents.  Those of us that are there will pick up other PA districts that are not ours. We need to have input (personal stories) from 17 more Congressional Districts in Pennsylvania to help our boys as effectively as possible.

YOU WON'T EVEN HAVE TO LEAVE YOUR HOME!

The goal this year is called 50 STATE CHALLENGE . This means we hope for Duchenne advocacy input from constituents from all 50 states and, hopefully, all congressional district. Pennsylvania, so far, needs input from 17 of its 19 districts. Here's how to do this without traveling to Washington – or anywhere. WE STILL HAVE TIME TO DO THIS.

http://www.parentprojectmd.org/getactive    (Scroll down and read Options #2 and #3.)

QUICK WAY:
You can sign-up for the Packet Drop Off (link provided above and below) where you can also fill out a quick survey (include a photo if you wish) regarding your situation.  This information will be included in the packet delivered to your Congress rep.


 MORE-IN DEPTH:
You can also get free help to create a more in-depth one-page flyer about your situation that can be included in the Drop Off Packets and delivered to your representatives by those who do go to Washington. The flyer telling your story can be duplicated for additional copies, easily sent as an email attachment, and can be easily edited for other Duchenne-related awareness and fund-raising purposes.  Visit link below to see a sample flyer.

SHARING OUR PERSONAL STORIES raises awareness, raises concern and makes others want to join in the fight against Duchenne.

http://www.parentprojectmd.org/getactive    (Scroll down and read Options #2 and #3.)

Thanks for reading this.

Gail

 

Personal Stories so Congress will help boys with Duchenne

At 8:28pm on January 9, 2010, Jacobs Mommom said…
Hi Manu: Thanks for contacting me. My grandson, Jacob, is 9 years old and we would love to get intouch with you and your family.
Are you going to the Advocacy Conference in February?
My phone number is 215-345-7421 and you can reach me in the evenings.
 
 
 

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