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Manish Sawhney
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  • New Delhi
  • India
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  • AMITABH SAH
  • Nandini Gupta
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  • sanjana
  • Jyoti
  • pooja gupta
  • Jiten Budhdeo

Manish Sawhney's Groups

 

Manish Sawhney's Page

Latest Activity

T. Wright joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Feb 13
Sai Chand. Gurujala commented on Manish Sawhney's group DUPLICATION in DMD
"My Nephew age is 7.5 years. Hemizygous Duplication of Exons 2 - 4. MLPA probe ratio : 1.83 - 1.98 CPK level - 12100 Please can anybody tell, When the complete treatment can be expected please"
Feb 10
Sai Chand. Gurujala joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Feb 10
Katie joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Sep 15, 2015
Kuldeep Singh joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Feb 24, 2015
Satish joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Jul 18, 2014
Kelli May joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Apr 13, 2013
Alina Popovici joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Feb 8, 2013
Donna Cicardo joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Oct 5, 2012
dietf joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
May 28, 2012
Jo-Anne joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
May 15, 2012
Heather Meermann joined Manish Sawhney's group
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DUPLICATION in DMD

To bring closer the families with DUPLICATION which is Rare-most of all DMD mutations.
Apr 18, 2012
Char Burke commented on Manish Sawhney's group DUPLICATION in DMD
"I believe Seph Ware - google in PPMD - has thyroid as well as DMD.  Char Burke"
Aug 22, 2011
semra inanç commented on Manish Sawhney's group DUPLICATION in DMD
"Hi Char, Thanks for answer,I'm already a member this group. I have  a question in my mind. My son is 5 years old. And his doctor started prednisolen 6 month ago. Another an endocrine doctor we have, He told us that my son has thyroid…"
Aug 15, 2011
Char Burke commented on Manish Sawhney's group DUPLICATION in DMD
"I had emailed Sharon Hesterlee about duplications and specifically personalized medicine re duplications.  She said that I could share the email so I thought I would.  Here you go.  Hi Char: It might be possible to address…"
Aug 12, 2011
Char Burke commented on Manish Sawhney's group DUPLICATION in DMD
"Hey Semra - there is another data group for duplications - please join that one - it has over 48 members.  There are alot of boys with the duplication in the beginning of the exon - it's in fact one of the hot spots.  I have heard…"
Aug 12, 2011

Profile Information

About me:
Hi..

I am the member of an Indian group who have formed "Indian Chapter of PPMD" with an objective to inform and educate the Duchenne families about latest advances & care aspects for their child. My nephew is affected with DMD.

DUCHENNE CURE IS SURELY AROUND THE CORNER, IF WE ALL THINK AND ACT TOGETHER !

Do write to us at :
IndianPPMD@gmail.com

Thanks & regards
Manish Sawhney
Name(s) of child(ren)/individual(s) with Duchenne:
Manav
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
New Delhi

Comment Wall (2 comments)

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At 11:26am on November 11, 2009, RAKTIM SINGH said…
Hi,
My kid 5.5 year old has been diagnosed with DMD. He has exon 46 to 50 deletion. I am trying to form group of parents in India. I am in bangalore.
My mail is raktims@infosys.com. Phone 9945225084.Please contact..
At 8:13am on October 22, 2009, shahabuddinshaikhh said…
hi iam from bangalore my son 11 is dmd my email shahabuddinshaikhh@yahoo.com &my ph 0 9844519871 please contact me
thanks
shahabuddin
 
 
 

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