Thanks for answer,I'm already a member this group. I have a question in my mind. My son is 5 years old. And his doctor started prednisolen 6 month ago. Another an endocrine doctor we have, He told us that my son has thyroid…"
"I had emailed Sharon Hesterlee about duplications and specifically personalized medicine re duplications. She said that I could share the email so I thought I would. Here you go.
It might be possible to address…"
"Hey Semra - there is another data group for duplications - please join that one - it has over 48 members. There are alot of boys with the duplication in the beginning of the exon - it's in fact one of the hot spots. I have heard…"
I am the member of an Indian group who have formed "Indian Chapter of PPMD" with an objective to inform and educate the Duchenne families about latest advances & care aspects for their child. My nephew is affected with DMD.
DUCHENNE CURE IS SURELY AROUND THE CORNER, IF WE ALL THINK AND ACT TOGETHER !
Do write to us at :
Thanks & regards
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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My kid 5.5 year old has been diagnosed with DMD. He has exon 46 to 50 deletion. I am trying to form group of parents in India. I am in bangalore.
My mail is firstname.lastname@example.org. Phone 9945225084.Please contact..