Started this discussion. Last reply by Mandy Jan 14, 2014. 11 Replies 0 Favorites
Started this discussion. Last reply by Mandy Apr 21, 2014. 7 Replies 0 Favorites
Started Dec 27, 2012 0 Replies 0 Favorites
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Thinking of your family often. Remember you won the airline ticket at the fundraiser. When you need to use it let me know. I will be running in the half marathon in Houston in Jan. We hope 35 will be participating for PPMD. I am having a yard sale for saveourboy in December. Wanted to get something going with the Heat but with all there delays of season etc. the NBA doesn't sound too promising this year. Will try to get in touch with UM basketball and see if we can arrange some type of fundraiser at a game there. How is Alex? He must be in his second year of high school. Grant started Kinder. Harriet
Hi Mandy! I noticed that you are going to be at CCHMC July 19-21. We will be there for our son's appointments the same three days. Maybe we will see you there. My son turned 14 in March.
Hi Mandy, it is so good to hear from you, above all, to hear that Alex is doing well.
Well, Andre is going to Floranada Elementary now. He likes school, and healthwise he is doing well, but his ambulatory stage has almost come to an end. He has been using his powerchair since September, first only at school, now he is using it everywhere, except at home where he still walks a little bit. The reality of progression is tough to digest, but overall we are doing fine. He will be going to the MDA camp this year for the second time. He loved it last year;) Keep in touch. Wish you all the best. Isabel
Hi Mandy
I got you phone number. I am 3 hours behind you. I will try to call 1:00pm Wednesday.
Karen
We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
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