Lyn Liebenberg
  • Female
  • Johannesburg, Gauteng
  • South Africa
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Lyn Liebenberg's Friends

  • Lesley Henderson
  • Colin McKenzie

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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Charl
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Johannesburg, Gauteng

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Comment Wall (5 comments)

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At 7:48am on December 7, 2016, Benson Christopher said…

Hello baby
My Name is Christopher Benson,I was born on 15th of April 1975,My father was originated from United State of America,and I grew up in LA.I am the only son and child of my family,i am here to find a woman in my life hope is you..?please write me mail(christopher7benson@hotmail.com)i think i like you.
thanks
Christopher Benson.

At 9:25am on March 3, 2009, Lesley Henderson said…
Hi Lyn-So glad to hear that Charl is doing well in Gr 1.We took Ethan out as he was just not coping & his pre-school teacher now teaches him "one on one" (We're very grateful to her!) & thankfully he's coping & much happier. Ethan has gone for a "re test" on his muscle biopsy which was done 6yrs ago. (Prof Krause @ Wits Genetics) and we will only get his results @ the end of June. He also takes 20mg Pulimson every 2nd day, & also a Calcium & Vit D supplement for his bones. I have to agree, it's a long uphill struggle to come to terms with this disease. It helps to have someone just to "listen" so if you ever need to "offload" you can drop me a line anytime. In the meantime, take care & regards,
Lesley
At 10:47am on March 2, 2009, Lyn Liebenberg said…
Hello Colin
Nice to have a response from somebody so close by. We have two sons Charl 7 with DMD & Henry 10. Charl was dignose in Feb 2007. His is on 20mg Pulmison ever second day. What options are you refering to?
He is in Graad 1 and doing very well. His is enjoying school with this friend.
Me on the other hand are still struggleing to come to terms with this.

How are your sons doing and how are you & your wife coping with this.

Will contact you soon.

Regard Lyn
At 11:25pm on March 1, 2009, Colin McKenzie said…
Hello Lyn

Sorry I missed your joining the site, I was in Australia, back now. Please acept me as a friend. I would like to getto know a little more about you and how Charl is doing, when was he diagnosed, are you aware of all the options.

Look forward to hearing from you. You can call me on my cell if you like, 082 784 0805.

Regards
Colin
At 7:13am on February 10, 2009, Lesley Henderson said…
Hi Lyn,
Welcome to PPMD. I'm sure you will find this site extremely helpful. There are not too many South Africans registered here so it's always good to have someone close to home to share with!
I live in Krugersdorp. Please feel free to drop me a line anytime.
Regards,
Lesley Henderson
 
 
 

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