Lorri Sizenbach
  • Female
  • Panama City, Florida
  • United States
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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Hayden Sizenbach
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Panama City, Florida

Comment Wall (5 comments)

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At 1:14am on May 23, 2010, Leslie Guzman said…
Hi Lorri,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 12:51am on December 4, 2009, Danielle L Shoupe said…
Hi I'm Danielle Shoupe I am a single mom of a 10 soon to be 11 year old son with DMD we live in Tallahassee.
At 6:59pm on September 1, 2008, Kari said…
Lorri, Welcome to PPMD Community.
At 3:58pm on September 1, 2008, Jennifer Collier said…
Hi Lorri.
My 3 year old boy, Ryan, was diagnosed with DMD in May of this year. We live in St. Augustine, Florida. Please join the Florida Families group!
At 3:06pm on September 1, 2008, Colin McKenzie said…
Hello Lorri,

Tell us a little more about you and the family, when did you find out? Brothers, cousins uncles etc, good to see you on the site, it is an amazing source of support and info.
Colin
 
 
 

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