What a handsome boy is Seph, congratulations. Like my Joaquin. we received the DNA test this month. We had arrange a meeting at CCHMC this december. we will travel from Peru. Any recommendation regarding diet and supplements are very well received. The local Dr. is suggesting us to start deflaxacort treatment, but he is 4 years old. at what time you decided to start?
We have had a pretty rough year since finding out that Josh has DMD. Josh is already using a walker, gained 40 pounds due to the prednisone, and is being casted every 5 months to help keep him walking. It just seems like it is happening all too fast! On top of it all I broke my wrist and elbow in April and doesn't seem like things are healing fast enough. It is all overwhelming and I feel like we are alone.... I know we are not but it feels that way.
Hi Lori.. It has been awhile since we last talked. My son Josh was diagnosed about a year ago at age 8 here in Shreveport. A lot has changed in the last year and I'm finding it difficult to cope with. I'm really in need of a friend who understands the emotional rollercoaster I can't seem to get off of. I hope to hear from you soon!
Hi Lori, thanks for you comment on the vitamins and supplements. Kevin is in prednisone and I am going to try and change this if possible. It was not an option a year ago, so will see when I visit the clinic again.