At present, I am employed as an in-home caregiver. I am serving as in-home caregiver to two young men who are on full life-support, they suffer from Duchenne muscular dystrophy. They are in their 20's now. The room they live in has no cooling. It gets tremendously hot in the summer in this room. These boys need protection from the heat. Is there advice or help anyone can offer to fix this problem? The family has had four boys with this dreadful disease, two have passed away.
About my family:
My husband and I have been married almost 38 years. We have two children and 5 grandchildren. However, I took a job to care for two young men in their 20's, who suffer from Duchenne muscular dystrophy. I have fallen in love with these two guys who love life even though they are on full life-support and full bed restrictions.
Name(s) of child(ren)/individual(s) with Duchenne:
Chris and Mike
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
Saint Anthony, Idaho
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Welcome Loretta! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
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