Lisa Crawford
  • Female
  • United States
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Lisa Crawford's Friends

  • Jay Keller
  • Audrey Tan
  • Megan Knight
  • Andrea Cleary
  • Shea Holbrook
  • christine good
  • Rosalene Graham
  • Keith Van Houten
  • Lisa Jones
  • Alison Willis
 

Lisa Crawford's Page

Profile Information

About me:
I'm a stay at home Mom wanting to reach out to others who share an interest in ending this terrible disease called Duchenne. I would like support from others who know what it's like& I would like to be there for others who may need a little support as well! We have to stick together, we must be our son's voices! Let's fight to end Duchenne once and for all!!
About my family:
I have a great husband named Mark. We have been married for 14 yrs. I have 2 sons ages 18 & 7, their names are Erik & Brendon. Although we have been devasted by this terrible disease known as Duchenne, it's made us stronger as a family. As bad as it seems I know people are faced with far worse circumstances. I must be thankful for what I have & count mt blessings, even though it's very hard sometimes. If God broughtit to you, He will get you through it.
Name(s) of child(ren)/individual(s) with Duchenne:
Brendon
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Goshen, IN.

Comment Wall (5 comments)

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At 10:03pm on July 19, 2011, christine good said…
Lisa, Hannaford suites is very nice and reasonable.  They deal with our families alot.  Go tot the zoo, compliments of the hosp.  Tour the Univ district, that is nice.  We went to Coney Island Park, too fun.  Make a vacation of it.  We were there a few weeks ago.
At 11:34am on March 29, 2011,
Staff
PPMD
said…
Hi Lisa- Regarding VECCTOR, you may be interested in reading a blog post by Sharon Hesterlee, PPMD's Senior Director of Research: http://community.parentprojectmd.org/profiles/blogs/dr-rhodes-sts
At 7:31pm on March 28, 2011, Megan Knight said…
Hello Lisa nice to meet and make you a friend. It will be nice to have someone to talk to and not live very far away.  We are also are trying to get outr son to Cincinnatis Children Hospital.  From what we have seen and been told by others it is the place to be for DMD.
At 5:38pm on March 28, 2011, kimmy watters said…
 hi lisa welcome i  have many friends, whos son have duchenne,  i to know what its like to  feel overwhelm. just know  that we are hear. kimmy watters
At 6:49pm on March 27, 2011, Andrea Cleary said…

Hi Lisa,

Still overwhelmed today? Feel free to unload on me if you need, and some day you can return the favor.

My husband just finished installing safety bath bars for Simon (10 and 3/4), not exactly how one wants to spend a Sunday afternoon.

Andrea from Montreal.

 
 
 

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