Linda Reed
  • Belleville, Illinois
  • United States
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Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Zachary A. Smith
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Valrico, Florida

Comment Wall (7 comments)

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At 1:25am on May 23, 2010, Leslie Guzman said…
Hi Linda,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 11:22am on October 27, 2009, Donna Gluck said…
Linda,
Do you know any other families that may have a son between the ages 8-12? Some that may want to particpate.
Donna
At 2:26pm on October 21, 2009, Donna Gluck said…
Hi Linda,
I found the page! It seems to be taking me awhile to learn the format. I have an web site dgcounselinginc.com My research is featured if you want to check us out! Thanks for getting back to me! Donna
At 2:10pm on October 21, 2009, Donna Gluck said…
Linda,
My email let me kmow you responded to my message. I do not know how to effectively navigate this site. My personal email is donnajg23@yahoo.com maybe this would work! Thanks in advance for your patience.Donna
At 12:08pm on October 13, 2009, Donna Gluck said…
Hi Linda,
My name is Donna Gluck. I am conducting research on emotions and boys with DMD. May I mail you information on my research proposal?
At 6:46pm on August 15, 2008, Kari said…
Welcome Linda.
At 4:32pm on August 15, 2008, Jacqueline Smith said…
Linda, good to see you joined. You have always been a supportive sister to me and aunt to Zach and Rae. Thank you! I just finished my page. Talk to you soon.
 
 
 

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