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Linda Rang
  • Female
  • Fullerton, CA
  • United States
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Linda Rang's Friends

  • S. Miglani
  • Mark Perrotte
  • Pat Furlong
  • Kim Maddux
 

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Linda Rang is attending PPMD's event
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2012 West Coast Connect Meeting at San Diego, CA

April 13, 2012 at 7pm to April 15, 2012 at 11:30am
PPMD is excited to host our first West Coast Connect Meeting, with a comprehensive agenda and an amazing assembly of speakers! When: April 13-15, 2012 Where: San Diego Marriott Mission Valley  Topics at a GlanceNatural History of DuchenneClinical trials: Steroid Approaches, Utrophin Upregulation Approaches, Exon Skipping approaches, Cardiac approaches, Novel Anabolic AgentsBehaviors in DuchenneHerSelf FirstLooking at Optimal CareCardiac CareRespiratory ManagementTransition CareDuchenne…See More
Apr 15
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Linda Rang is now friends with Mark Perrotte and S. Miglani
Feb 21
Mark Perrotte left a comment for Linda Rang
"HI Linda.  My son attended the OC MDA Camp this summer.  I am trying to meet families to share experiences and answer question.  Unfortunately, I haven't had any needs met by my Neurologist at Loma Linda, and even the MDA…"
Feb 20

StaffPat Furlong left a comment for Linda Rang
"Hi Linda It was wonderful to meet you on Saturday.  Please let me know if I can be of help.  Please feel free to send an email (pat@parentprojectmd.org) or call my mobile 917-578-1841.  Warm regards, Pat"
Sep 5, 2011

StaffPat Furlong and Linda Rang are now friends
Sep 5, 2011
Linda Rang commented on Linda Rang's photo
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"Making friends at camp!"
Sep 4, 2011
Linda Rang commented on Linda Rang's photo
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"The wonderful counsellors who took care of Ryan;)"
Sep 4, 2011
Linda Rang posted photos
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Sep 4, 2011
Linda Rang posted a photo
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Aug 26, 2011
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Linda Rang and Kim Maddux are now friends
Aug 26, 2011
Kim Maddux left a comment for Linda Rang
"Hi Linda -  Glad you joined.  This PPMD site is amazing.  YOu will learn so much and meet alot of great people.  Welcome.  "
Aug 16, 2011
Linda Rang is now a member of PPMD Community
Aug 15, 2011
Welcome Them!

Profile Information

About me:
I am married and the mother of a 13 year old boy with DMD. I teach kindergarten and devote myself to my son, family, and my teaching. I want to get so much more involved with meeting other families who are experiencing the same as us.
About my family:
My husband's name is Jeff. I have a 17 year old step-daughter named Jade. And Ryan is 13 years old. We have a 7 year old crazy labrador retriever, Koda, who Ryan just loves. We also have a bearded dragon lizard named Rocky.
Name(s) of child(ren)/individual(s) with Duchenne:
Ryan
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City and State:
Fullerton, CA
Country:
USA

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Comment Wall (3 comments)

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At 6:46pm on February 20, 2012, Mark Perrotte said…

HI Linda.  My son attended the OC MDA Camp this summer.  I am trying to meet families to share experiences and answer question.  Unfortunately, I haven't had any needs met by my Neurologist at Loma Linda, and even the MDA wasn't present at our last appointment.  My son's strength is declining steadily and I am trying to prepare myself for the next step.  Everything I know as a parent has been changed to accomadate my son.  I hope you'll come to visit our page at LIVING WITH DUCHENNES MUSCULAR DYSTROPHY on Facebook.  My name is Mark Perrotte.  I have to be honest, I was very displeased with certain things this past year, some of them dealing with the MDA of Orange County.  There are just no resources for families out in the Palm Springs area, and we just struggle to afford to commute to O.C. when we need help.  Thanks for listening..Hugs to your son..Mark

At 11:54am on September 5, 2011,
StaffPat Furlong said…

Hi Linda

It was wonderful to meet you on Saturday.  Please let me know if I can be of help.  Please feel free to send an email (pat@parentprojectmd.org) or call my mobile 917-578-1841.  Warm regards,

Pat

At 7:52pm on August 16, 2011, Kim Maddux said…

Hi Linda -  Glad you joined.  This PPMD site is amazing.  YOu will learn so much and meet alot of great people.  Welcome.

 

 
 
 

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