We had a fundraiser that our paper wouldn't even cover for some reason! We did raise about 4,500 for Jett Foundation, so it worked out great anyway....thanks to Facebook and PPMD! My email is firstname.lastname@example.org. So nice to know there are others in my area with DMD. Sometimes I feel like an absolute alien!
I read your article in the Seacoast Sunday paper. My Dad lives in Hampton and found the article for me. I have a 2 year old with DMD and live in Haverhill, MA. You have a beautiful family and a great attitude! It was a very uplifting take!