I live with my family in NH. I work full-time making it difficult to manage my other full time job of researching, fund raising, and the various therapies and treatments that we've added to our schedules!
We've been living with DMD for a little over 4 years now and although we will never come to terms with it, we have accepted it for what it is and are going to do everything we can to both keep Lucas strong until the cure is found and to raise money to speed up the process!
About my family:
My husband, Randy and I have two children, Lucas who just turned 9 and and Alyssa who is 10. We love doing anything outside, skiing, biking, and swimming!
Name(s) of child(ren)/individual(s) with Duchenne:
We found your page for Lucas on firstgiving.com, we also have a page for Logan. He will be 4 on Aug 5th, and we just found out he had DMD less than 2 months ago. It has been so scary thinking about the future, but we want to help now, and hope for a cure! You guys have done great! - Morgan http://www.firstgiving.com/loganjames