Hi to all, my name is Lina. Im a full time mother of four children. Im very interested in being part of this community for my own sanity and for betterment of my son and families life.
About my family:
We have four wonderful children. Three girls aged 11, 6 and 18months and one amazing son who just turned 8. Our family loves to laugh, we love to go out visiting family and friends and watching movies together.
Name(s) of child(ren)/individual(s) with Duchenne:
When do you leave? Will you be in town for our joint national conference with INMR Westmead - Sydney Uni - Feb, 2010? We have a couple of blue ball events before then - one in June & one in October at the Opera House. Please let me know your email so I can put you in the loop with other DMD families around Oz?
I am good freinds with Sharon Thompson. I live on the Northern Beaches of Sydney and am organising a walk-a-thon to help raise money for MD Research. Would be great to get you and your family involved. The details are as follow:
Walk for MD
April 5, 2009 at 10:30am – Manly Beach, Sydney TAKING THE STEPS TO FIND A CURE When: Sunday 5th April, 2009 Where: Manly Beach, Sydney Start: Queenscliff Surf Life Saving Club @ 10:30am Return to Surf Life Saving Club for Sausage Sizzle Route...
Let me know if you are interested and I can send you are sponsorship form.
Where in Sydney are you living? We are originally from Collaroy, but in SIngapore at the moment.
I know what you mean about withdrawn - it is really tough getting used to our son's diagnosis. But we're getting there slowly. Trying to make a difference by raising money for research - it keeps our minds busy so we don't get sad all the time.
If you ever need to talk, just send me a message. I have been where you are for 2 years and have dealt with homepaths and counsellors to get me to a better place. Only people in our position can truly understand how we feel. Family can only understand so much. This place is a great vehicle of support.