Started this discussion. Last reply by Penny Hauer Jun 9, 2010. 15 Replies 0 Favorites
Started this discussion. Last reply by Moein Apr 7, 2011. 1 Reply 0 Favorites
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When do you leave? Will you be in town for our joint national conference with INMR Westmead - Sydney Uni - Feb, 2010? We have a couple of blue ball events before then - one in June & one in October at the Opera House. Please let me know your email so I can put you in the loop with other DMD families around Oz?
I am good freinds with Sharon Thompson. I live on the Northern Beaches of Sydney and am organising a walk-a-thon to help raise money for MD Research. Would be great to get you and your family involved. The details are as follow:
Walk for MD
April 5, 2009 at 10:30am – Manly Beach, Sydney TAKING THE STEPS TO FIND A CURE When: Sunday 5th April, 2009 Where: Manly Beach, Sydney Start: Queenscliff Surf Life Saving Club @ 10:30am Return to Surf Life Saving Club for Sausage Sizzle Route...
Let me know if you are interested and I can send you are sponsorship form.
Michelle
Where in Sydney are you living? We are originally from Collaroy, but in SIngapore at the moment.
I know what you mean about withdrawn - it is really tough getting used to our son's diagnosis. But we're getting there slowly. Trying to make a difference by raising money for research - it keeps our minds busy so we don't get sad all the time.
If you ever need to talk, just send me a message. I have been where you are for 2 years and have dealt with homepaths and counsellors to get me to a better place. Only people in our position can truly understand how we feel. Family can only understand so much. This place is a great vehicle of support.
Sharyn.