Lilian Wales
  • Female
  • Freshwater, NSW
  • Australia
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Profile Information

About me:
I was born in Denmark but came to Australia in 1991 to be with my husband Peter.
About my family:
We have three lovely children, Nicolas 14, Cecilia 12 and Philip 11 years old.
Name(s) of child(ren)/individual(s) with Duchenne:
Philip
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Freshwater, Sydney

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Comment Wall (3 comments)

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At 5:02am on September 4, 2009, Karen Carter said…
Hi Lillian,

Lavington is on the border of NSW and Victoria. You may have heard of Albury/Wodonga. You have to drive through here to get to Melbourne from Sydney (well not really any more because there is a freeway now).
My son Mitch is 14 and he has Duchenne. We found out when Mitch was 6.

Karen
At 9:43pm on August 29, 2009, Lilian Wales said…
The 2009 Burwood Festival is being held on Sunday 20 September 2009.

This year the Festival will have a new layout, new entertainment concepts, more exciting attractions all designed to provide a successful day for festival traders.

The day’s activities will be held within Burwood Park and the Burwood CBD with a fantastic mixture of food and merchandise stalls, entertainment and cultural performances.

The Classic Car Display Day incorporated into the Festival will feature over 200 Classic cars, speed machines, muscle cars and hot rods they will line Burwood Road and Park Avenue

We have organised to sell cakes and homemade jewellery (my daughter and her friends are being very creative) do facepainting and have a jellybean guessing competition (how many jellybeans in a jar) and last but not least sell raffle tickets towards hampers. If you are able to come and help during the day that would be fantastic. The festival runs from 10am to 5pm, but obviously we'll be there earlier to set it all up.

Lilian
At 4:40am on February 18, 2009, Sharyn Thompson said…
This is for all Australians affected by DMD. The inaugural "The Tour Duchenne" will start in Sydney on March 7th at 7am and will end in Melbourne on March 16 at around 2.30pm.

The riders will start their journey at The Institute for Neuromuscular Research (INMR), based at The Children’s Hospital at Westmead, then make their way via Wollongong, Batemans Bay, down the picturesque south coast of New South Wales, through country Victoria and then onto Melbourne, where they will finish at the National Muscular Dystrophy Research Centre (NMDRC).
 


Our plan is for this to become a huge nationwide event, so we need your support for this initial ride. You can view all the details about the ride and its participants at www.tourduchenne.com.

Please ask everyone you know to support this fantastic cause. Our aim is to raise $1million to go towards finding a cure for this insideous disease. Whilst a cure may be too late for some boys, we can spare future generations from suffering from DMD.

For those people based in Sydney, there is a "Farewell" event at The Cargo Bar on Wednesday, March 4 2009. Admission is $100 and will include food and drink, silent auctions, celebrity host Tom Williams, and guest speakers. There will also be lucky door prizes, and all $100 tickets receive 5 entries into our guessing competition, with some AMAZING prizes. You can see a list of prizes on our website. To buy tickets to this event, please visit the site http://www.mda.org.au/events/tourD/launch.asp.

We need your support, and that of everyone you know. We HAVE to find a cure, we all want our little boys to grow up and be wonderful, happy and healthy adults. We can achieve this by starting here!

Also, if you (or anyone you know) needs to contact me at all, you can reach me on realthomo@hotmail.com or here on PPMD. Any questions at all, I will be able to answer.
 
 
 

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