Started this discussion. Last reply by Conrad Klahn Dec 29, 2016. 1 Reply 0 Favorites
Social isolation is starting to become more and more real to me. When A simple task turns into a trial. The little things like going to the grocery store, an event, the pumpkin patch or even just to…Continue
Started this discussion. Last reply by Tracy Carbaugh Jul 22, 2015. 1 Reply 0 Favorites
OK so I'm a 25 year old single mother. I am terrified of the future because I know that Mj is only going to get heavier and weaker. I have little experience in caring for a dependent adult. Granted…Continue
Started this discussion. Last reply by David Jul 6, 2015. 3 Replies 0 Favorites
Mj has a partial duplication including exons 2-47. I was wondering how unique my son's case is. Does anyone else have the same classification? I'm just wondering if there is any similarities in the…Continue
Started this discussion. Last reply by Robin Taylor Jul 9, 2015. 13 Replies 0 Favorites
Hello everyone, my son is seven years old and was recently diagnosed with DMD about a month or two ago. I would like to start him on steroids as soon as possible. His doctor has suggested entering…Continue
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