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Kansas City Area DMD fam…

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Illinois/Missouri Famili…

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Adolescence (age 7-12)

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Leresa's Discussions

Now I understand why social isolation is so prominent

Started this discussion. Last reply by Conrad Klahn Dec 29, 2016. 1 Reply 0 Favorites

Social isolation is starting to become more and more real to me. When A simple task turns into a trial. The little things like going to the grocery store, an event, the pumpkin patch or even just to…Continue

fearful of the future

Started this discussion. Last reply by Tracy Carbaugh Jul 22, 2015. 1 Reply 0 Favorites

OK so I'm a 25 year old single mother. I am terrified of the future because I know that Mj is only going to get heavier and weaker. I have little experience in caring for a dependent adult. Granted…Continue

similarities in diagnosis

Started this discussion. Last reply by David Jul 6, 2015. 3 Replies 0 Favorites

Mj has a partial duplication including exons 2-47. I was wondering how unique my son's case is. Does anyone else have the same classification? I'm just wondering if there is any similarities in the…Continue

participating in research trials

Started this discussion. Last reply by Robin Taylor Jul 9, 2015. 13 Replies 0 Favorites

Hello everyone, my son is seven years old and was recently diagnosed with DMD about a month or two ago. I would like to start him on steroids as soon as possible. His doctor has suggested entering…Continue

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Leresa's Page

Profile Information

About me:: Single mother of 2, full time college student & bartender

About my family:: 5month old daughter, Mariah. Son, Michelangelo, with a partial duplication including exons 2-47.

Name(s) of child(ren)/individual(s) with Duchenne:: Michelangelo

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: independence

State:: mo

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At 9:41am on July 12, 2015, Mirtha said…: Hi Leresa ... My son has a deletion of exons 45 to 50 . My husband and I are still very unsecured about starting him on steroids but I also understand it's the only medication that has demonstrated that can delay progression . The only reason my little one got diagnosed at this age its becuase every time I has brought him to a specialist for the last 3 years to see why he would not do certain things doctor would tell he was fine he was just not developing at a normal speed , until I found a video in youtube with a kid with DMD and in him I saw my son . for now my Nico is healthy , having difficulty running and going up the stairs . How is your little one doing ? I found some supplements here that you can look for and maybe other parents can comment too . Those are Protandim and Idebenone . Best of luck . My personal email : mirthareyes1@aol.com