Lelia Ginder
  • Female
  • Gainesville FL
  • United States
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  • Evrim Argun
  • Rick Ginder
  • alexandra grau quinteros
  • DeeAnn Gravenstein
  • DanielsDad
  • Rosanna Ouellette
  • Allison & Whalen Kuller
  • Jessica Rownd

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Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

Comment Wall (11 comments)

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At 9:36am on January 13, 2010, Rosanna Ouellette said…
Hi Jake started out w/razor electric scooters when he was younger. This one is gas powered electric start( too difficult to pull a start cord) we ordered it on-line and had a local shop assemble it. It really is for over 16 y/o, he is 15. For 8y/o it would probably be too much? Where do u live?
At 10:24pm on March 30, 2009, Julie Hathaway said…
Brandon has a great imagination as well. He is really in to Hot Wheels and play station. Thanks for the tip about the movie. He doesn't even know he's going to participate in the study. He'll just be so excited about flying for the first time. He and his daddy will certanily have some good male bonding time. That's important! Looking forward to meeting you.
At 10:15pm on March 30, 2009, Julie Hathaway said…
Wonderful! How did the first session go? Was it all that you had hoped for? Maybe your family could meet Bobby, my husband, and Brandon while they are there. I will be at home with our other two children. I will be making one of the other trips for sure. Yes, Brandon loves legos. Why do you ask? Looking forward to meeting you at the conference. Is your husband going as well?
At 9:42pm on March 30, 2009, Julie Hathaway said…
Hey! We have a lot in commom other than the obvious. Brandon will be 7 in July and started deflazacort in January. He was diagnosed last year in Oct. and we saw Dr. Wong in Dec. We'll be visiting her again in July. Did you say you were going to the conference in Atlanta. I can't keep up with everyone. My husband and Brandon will actually be in your town on June 11th and 12th. Brandon is participating in the MRI student at UF. Are you all participating by chance? How cool would that be? Let me know. If so, the boys will have to meet.
At 8:39pm on March 30, 2009, Julie Hathaway said…
Hey! Do you live in Gainesville, Georgia or Florida? We live in Greenville, S.C.
At 8:38pm on March 30, 2009, Julie Hathaway said…
I look forward to meeting you. My son, Brandon, will be 7 in July.
At 9:02am on March 26, 2009, DeeAnn Gravenstein said…
HI Lelia,
I talked with Kris. How's Tuesday 8:30 at Tioga Starbucks? Kris can come and we'll play with her little Kaitlyn. She's 1 or 1 1/2 years. I look forward to seeing you!
At 8:46pm on March 24, 2009, DeeAnn Gravenstein said…
Hi! Tues/Thurs mornings before 10:30 or after 12. I'd like for you to meet Kris Hersom. She lives in Newberry. Her son is in the 1st grade. She is a lovely person. She is a nurse who now stays home with her little ones. Maybe she could join us. Let me know a good time for you.
At 3:08pm on March 24, 2009, DeeAnn Gravenstein said…
Hi Lelia! You are a dear. When may we have coffee?
At 9:56am on March 24, 2009, Nicole Chiaramonte said…
I would love to be able to take my son there. But I have not been able to do so yet.

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