PPMD Community

Leeandra Arhdeacon
  • Female
  • Hollister, CA
  • United States
Share on Facebook
Share

Leeandra Arhdeacon's Friends

  • Ann Lucas
  • Sherri Looper
  • julian cespedes
  • Bruce Farrar
  • Jessica Argueta Tucker
  • Christina Roberts
  • Geraldine Coolidge
  • Wendy Juzwiak
  • S. Miglani
  • Jennifer Edge
  • Megan Knight
  • Kira Mullaly
  • Candice Wright
  • Jim Winstead
  • joe ramsey

Leeandra Arhdeacon's Discussions

Idebenone

Started this discussion. Last reply by Rahul Deshpande Jul 28, 2014. 35 Replies

My sons doc recommended he take 200mg of Idebenone, i am having a really hard time frinding it. Where do you guys order it from? Also Green tea extract 150mg?

clinical trial

Started this discussion. Last reply by Leeandra Arhdeacon Jul 8, 2011. 92 Replies

Are their any open clinical trials for deletion 22-41?

DMD Clinics

Started this discussion. Last reply by Bill Cain Oct 23, 2010. 5 Replies

We are trying to make a decision on switchng from LPCH to another MDA clinic or DMD clinic, we live in California...any suggestions, where do you take your son and reason for choosing? We are…Continue

How often does your son attend PT/OT

Started this discussion. Last reply by Keith Van Houten Oct 8, 2010. 3 Replies

Hi there, I thought I would add this for discussion.......When was your son diagnoised? How soon did you begin him in Physical/Ocupational therapy? How often do they get therapy? and where??? I…Continue

 

Leeandra Arhdeacon's Page

Profile Information

About me:
mother of two awsome children, I like to sew, scrapbook and camp.
About my family:
I have been maried for 10 years and a mother of two beautiful children Nicholas 3, Isabella 16 months, I am proud that God chose me to be there parent!
Name(s) of child(ren)/individual(s) with Duchenne:
Nicholas
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Hollister, Ca

Leeandra Arhdeacon's Photos

  • Add Photos
  • View All

Comment Wall (10 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 7:55pm on September 20, 2012, Sherri Looper said…

Thanx Leeandra! Look forward to meeting you and everyone!

At 11:58am on September 10, 2012, Sherri Looper said…

Hi Leeandra, Thank you so much! I look forward to meeting the group.

At 12:29am on November 19, 2010, Misty VanderWeele said…
HI LEEANDRA :-) Now we are friends on here too! ;-)
At 12:40am on October 11, 2010, Rebecca Saulsbury said…
Hi Leeandra, I live in the Bay Area with my 10 year old son with Duchenne. I'm hardly ever on this site anymore but feel free to look me up on Facebook. Nice to meet you.
At 12:59pm on October 8, 2010,
Staff
Stephanie Matthes
said…
Hi Leeandra! You can find information about the 2011 Connect conference in PPMD's October Newsletter! It's going to take place in Baltimore, July 6-10, 2011.
At 11:33pm on October 4, 2010, Lesley Wilson said…
Hi Leeandrea,
Yes, Jordan does go to PT... but so far not very often. The service is provided through California Children's Services. I think they also offer OT as well. Here is the application link: http://www.dhcs.ca.gov/formsandpubs/forms/Forms/ChildMedSvcForms/dhcs4480.pdf

Where did you find the pool therapy for your son? Right now Jordan takes swimming lessons, but I would love for him to get therapy in the pool.

I'm hoping you and your family are well!

~Lesley
At 10:18pm on October 4, 2010, Susan Rathfelder said…
Leeandra, I am so happy you were able to find some pool therapy for your son.
Susan
At 12:57pm on August 24, 2010, Susan Rathfelder said…
Jon did pool therapy when he was younger, it was great for him. Even though he isn't doing that anymore I think that is why is pulmonary function is still good. Jon had his pool therapy through a private/non-profit orthopedic clinic here in Long Beach. They had quite a few young patients with various diagnoses. For awhile there were two other DMD boys in with him, one older and one younger than Jon. They only had 2 or 3 patients in a the pool at a time and had both a PT and a PT assistant in the pool with the kids. The Dr. who sees him at our local Children's Hospital referred him.
At 8:17pm on August 23, 2010, Lesley Wilson said…
I know exactly what you mean. It's been a year and half for our family and I'm still trying to figure out my feelings - it's hard to process. But, please know I am always her to lend an ear or chat. Take care! ~Lesley
At 4:56pm on August 23, 2010, Susan Rathfelder said…
Hi Leeandra,

My name is Susan, my son Jonathan is 19 and we are in Southern California.
Sorry to have to meet you under these circumstances. Just wanted to send you a quick note to tell you to make sure you apply for California Children's Services. Here's a link: http://www.dhcs.ca.gov/services/ccs/Pages/apply.aspx. You may be able to get financial help if you meet the criteria, you can also get physical therapy and occupational therapy services. They will also send a therapist to your child's school to help them meet his needs.

Susan
 
 
 

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service