Leah stevens
  • 44, Female
  • walla walla, wa
  • United States
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About me:
i am 37 and have 2 kids one 16 my son dezi who has duchenne muscular dystrophy and is doing very well still and a 17 year old daughter who helps me with her brother and my husband richard who is their step dad helps me out a bunch with lifting dezi.
About my family:
our son is the 7th boy in our family to have dmd dating back to 1927. when i went to have kids i wasnt even sure what dmd was our family never really talked about it. dezmon (dezi) is 16 and is no longer walking as of last june with dmd. my daughter Lucrecia is 17 and a big help when it comes to her brother.
Name(s) of child(ren)/individual(s) with Duchenne:
dezmon southwick
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
walla walla
State:
washington

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need to let it out

Posted on February 18, 2013 at 3:17pm 0 Comments

guess for me that finding out dezi had dmd was ok... it didnt really bother me i just saw him as my son nothing different maybe it was cuz he is the 7th boy in our family to have it so it was no surprize... i do have good days and bad days more good then bad .....with dmd and work and go through a divorce and re marry to someone that is so much help in our lives .... thanks for listening

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