Laurie Hoovestol
  • Female
  • West Fargo, ND
  • United States
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Laurie Hoovestol's Friends

  • Darla Schulz
  • Penny Pratt
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  • Cheryl Markey
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  • Shelly Johnson
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  • Marian Lamberson
  • Katherine M. Reynoldson
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Laurie Hoovestol's Discussions

Constipation

Started this discussion. Last reply by Ann Avery Oct 6, 2010. 1 Reply

Feeding tube

Started this discussion. Last reply by Diane Spiess Sep 23, 2009. 10 Replies

Sleep Number Beds

Started this discussion. Last reply by Laurie Paschal Apr 10, 2009. 1 Reply

 

Laurie Hoovestol's Page

Profile Information

About me:
I am 43 years old and married to my best friend of almost 25 years. I stay at home and take care of our son who has duchenne. I am so thankful to have him and to take care of him. I also help my husband with our businesses daily.
About my family:
My husband's name is Grant
We have 4 kids.
Nikki- 23
Garison-20
Whitney-18
Gustin-17
Name(s) of child(ren)/individual(s) with Duchenne:
Gustin
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
West Fargo North Dakota

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Laurie Hoovestol's Blog

18th Birthday

Posted on January 11, 2010 at 11:19pm 5 Comments

Our son Gustin will be 18 years old on Friday, Jan.15. Thirteen years ago, 7 months after his 5th birthday we learned that he had Duchenne Muscular Dystrophy. We had no idea what the doctor was talking about when he told us he had it and what it was. It was the most devastating news! We went home and couldn't stop crying. Feeling the need to learn more we turned to our 1970 Encyclopedia and it told us most boys don't live beyond 18 yrs old. It hurt more than imagineable! As we looked at our… Continue

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At 11:06am on October 9, 2009, Katherine M. Reynoldson said…
Hi Laurie,
Hope you and your family are well. Hard to believe that it is already October time seems to fly by. Just wanted to say hello...
Katherine
At 1:50pm on August 29, 2009, Katherine M. Reynoldson said…
Hi Laurie,
Just checking in. Is your son gaining weight? If not please go forward with the feeding tube he could really use the nutrition and sometimes a little intervention goes a long way.
Katherine
At 1:54pm on July 2, 2009, Katherine M. Reynoldson said…
Hi Laurie,
Thought I would just touch base a see how your son is doing. Did your son end up getting a feeding tube? Hope you both are well.
Katherine
At 3:51pm on April 18, 2009, Tina said…
HI Laurie

Have you thought about getting a nutritional consult. She/He would be able to figure out the amount of calories your son would need to take in to help maintain or increase his weight.
Have you discussed this procedure with your son? How is he feeling about it? A Gastrointestinal specialist can talk to you about the procedure.

From a nursing standpoint, continuous feeding are much better versus bolus can feedings. There is less risk of aspiration with continuous feedings. Night-time feedings is a good start and again, a dietician or nutritionist can give you all of hte recommendations. Some benefits of having a g- tube ( gastrostomy tube) are:
obviously maintaining calories/increasing calorie intake, as already said, maintaining hydration, and also serves as an easier and quicker access to administer pills.
Now, you can give his medication through the g-tube. This may be a bonus especailly is you are trying to give him nasty tasting pills/supplements. He won't taste them now.
Occasionally, g-tubes have been known to come out so you would have to take him to the emergency room to have one re-inserted. Depending on the type of tube, it could be done in the ER. If trained, you could re-insert one in your own home. It's not as hard as you think. You could do it.
At 10:26am on March 3, 2009, Darla Schulz said…
Thanks, Laurie. We need each other's support, I believe. I am happy to meet you and am on your side!
Darla
At 2:37am on February 16, 2009, Cheryl Markey said…
What a beautiful family! Thanks for sharing the pictures with us here on PPMD!
At 10:04am on February 15, 2009, Jennifer Shumsky said…
I should lclairify when I say younger, I'm not that much younger than you, but my son is younger than yours :)
At 10:03am on February 15, 2009, Jennifer Shumsky said…
Hi Laurie,
Nice to "meet" you. You are not to far from us. My husband used to have to travel your way for work, but that has recently changed. You have a very good looking family. Do you go to your MDA clinic in Fargo for care or do you travel here to Dr. Day or do you go to a different clinic? We have been happy with Dr. Day so far and with Gillette becoming a MDA clinic it has made life much easier for us. Welcome to the site, although I think we younger mom's will learn much more from you, so maybe I should say thank you for joining the site :)
At 10:46am on February 10, 2009, Shelly Johnson said…
I know of a few people in North Dakota, but I have not been in contact with anyone. We found out about our son when he was 2 yrs old, he is now in kindergarten and doing great. I just had him at the MDA clinic in Fargo on Friday. There is actually a MDA Group that started up again. I am a single mom, so life has it's challenges.
At 10:46am on February 3, 2009, Marian Lamberson said…
My husband is from Texas and says West Fargo is the coldest place in the USA? And we live in Canada know...is it really that cold?
How do you deal with the snow and the power chair?
 
 
 

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