LarryW
  • Male
  • Irvine
  • United States
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  • Polly Sundeen
 

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City:
Irvine, CA

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At 6:22pm on August 7, 2008, Polly Sundeen said…
Well if you ever want to say Hello in person - stop by. Have you ever taken classes here? I work in the Office of Admissions & Records (not up front thank goodness!). Here's my number in case you are ever on campus or just want to chat - 949-451-5216.
Take care,
Polly
At 4:35pm on August 7, 2008, Polly Sundeen said…
Hi Larry! I work at Irvine Valley College - small world, huh? We live in Tustin and our son is 9 - his name is Cole. Where do you go for care? I have had a difficult time finding specialists that know much (if anything) about DMD. I'd appreciate it if you had any that you felt were capable if you would share their information/specialty.
Thanks!
Polly Sundeen
At 3:38pm on August 7, 2008, Kari said…
Welcome Larry to PPMD Community!
At 3:08pm on August 7, 2008, LarryW said…
No, I have not been selected. I am the one that actually has muscular dystrophy. I have the stop codon mutation that PTC 124 is treating. I am patiently waiting until I can use PTC 124. Just would like to hear about how the trials are going.
At 3:04pm on August 7, 2008, neeraj said…
hi larry

Are you connected to ptc trial,do you mind sharing your thoughts and experience
 
 
 

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