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Kristina
  • Female
  • Vilnius
  • Lithuania
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Kristina's Friends

  • Amy Ridolphi
  • Kira Mullaly
  • Ela

Kristina's Groups

 

Kristina's Page

Latest Activity

Kristina and Kira Mullaly are now friends
Jan 31
Amy Ridolphi and Kristina are now friends
Oct 31, 2011
Kristina posted a status
"Thank you Amy."
Oct 25, 2011
0 Comments
Amy Ridolphi left a comment for Kristina
"Kristina - welcome to this site. My own son was diagnosed a year ago and it's been so helpful to find other parents who can relate. It really helps you get through the adjustment. My son has deletion, but exon 8-33. "
Oct 25, 2011
Kristina commented on PPMD's group Deletions
"Hi everyone, we are pretty new here and a bit shy to write here. Our son was recently diagnosed with dmd. He is four. I wonder if there is anyone hwo has deletion of exon 72. I'd really appreciate hearing from you. Thanks!"
Oct 25, 2011
Ela left a comment for Kristina
"Sveiki. Jau senokai nebuvau siame tinklapyje, bet siandien uzsukau ir radau jusu zinute. gal tikrai galeciau jums padeti, nes apie sia liga zinau viska, kiek tik imanoma zinoti. Turiu aukstaji medicinini issilavinima - esu kinezitrapeute. Ir turiu…"
Oct 25, 2011
Kristina joined PPMD's group
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Deletions

Oct 24, 2011
213 Comments

StaffPPMD left a comment for Kristina
"Welcome Kristina! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.   We'd love to hear a little bit more about…"
Oct 24, 2011
Kristina is now a member of PPMD Community
Oct 24, 2011
Welcome Them!

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Zygimantas
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City and State:
Vilnius
Country:
Lithuania

Comment Wall (3 comments)

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At 10:53am on October 25, 2011, Amy Ridolphi said…

Kristina - welcome to this site. My own son was diagnosed a year ago and it's been so helpful to find other parents who can relate. It really helps you get through the adjustment. My son has deletion, but exon 8-33. 

At 2:31am on October 25, 2011, Ela said…

Sveiki. Jau senokai nebuvau siame tinklapyje, bet siandien uzsukau ir radau jusu zinute. gal tikrai galeciau jums padeti, nes apie sia liga zinau viska, kiek tik imanoma zinoti. Turiu aukstaji medicinini issilavinima - esu kinezitrapeute. Ir turiu 10 metu patirties gyventi su sia liga...Galiu duoti daug patarimu, kuriu knygose nerasit, ir kuriu joks gydytojas nepasakys. Viskas is patirties, ka daryti, i ka atkreipti didziausia demesi, netgi kuo maitinti, kokius maisto papildus duoti ir t.t. Tik neduokt vaikui hormoniniu preparatu, prednizolono, ar ko jums ten israse. Laikinas, apgaulingas efektas, kenkia inkstams ir kepenims. Visa tai as jau praejau, turejau laiko 10 metu gilintis i sia liga. Jei idomu, parasykit i emaila : ela.beuty@yahoo.com. Paskui apsikeisim telefonais. Laikykites, nepasiduokit, jums bus nelengva.

At 11:31am on October 24, 2011,
StaffPPMD said…

Welcome Kristina!

We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.

 

We'd love to hear a little bit more about you and your family! Also, don't forget that it's super easy to upload a profile picture to your page.. Just click on the "Settings" link on the right side of the page, and choose a photo to upload! We love seeing the faces of the community :)

 

If you ever need anything, please don't hesitate to contact us by phone, email, or message!

800-714-5437 - community@parentprojectmd.org

 

 
 
 

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