Kristina
  • Female
  • Vilnius
  • Lithuania
Share on Facebook
Share
  • Featured Blog
  • Discussions
  • Events
  • Groups (1)
  • Photos
  • Photo Albums

Kristina's Friends

  • inga onikadze
  • Irina Zyabirova
  • Izabella Różańska
  • Dovile
  • Grzegorz Majchrzak
  • Amy Ridolphi
  • Kira Mullaly
  • Ela

Kristina's Groups

 

Kristina's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Zygimantas
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Vilnius

Comment Wall (3 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 10:53am on October 25, 2011, Amy Ridolphi said…

Kristina - welcome to this site. My own son was diagnosed a year ago and it's been so helpful to find other parents who can relate. It really helps you get through the adjustment. My son has deletion, but exon 8-33. 

At 2:31am on October 25, 2011, Ela said…

Sveiki. Jau senokai nebuvau siame tinklapyje, bet siandien uzsukau ir radau jusu zinute. gal tikrai galeciau jums padeti, nes apie sia liga zinau viska, kiek tik imanoma zinoti. Turiu aukstaji medicinini issilavinima - esu kinezitrapeute. Ir turiu 10 metu patirties gyventi su sia liga...Galiu duoti daug patarimu, kuriu knygose nerasit, ir kuriu joks gydytojas nepasakys. Viskas is patirties, ka daryti, i ka atkreipti didziausia demesi, netgi kuo maitinti, kokius maisto papildus duoti ir t.t. Tik neduokt vaikui hormoniniu preparatu, prednizolono, ar ko jums ten israse. Laikinas, apgaulingas efektas, kenkia inkstams ir kepenims. Visa tai as jau praejau, turejau laiko 10 metu gilintis i sia liga. Jei idomu, parasykit i emaila : ela.beuty@yahoo.com. Paskui apsikeisim telefonais. Laikykites, nepasiduokit, jums bus nelengva.

At 11:31am on October 24, 2011,
Staff
PPMD
said…

Welcome Kristina!

We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.

 

We'd love to hear a little bit more about you and your family! Also, don't forget that it's super easy to upload a profile picture to your page.. Just click on the "Settings" link on the right side of the page, and choose a photo to upload! We love seeing the faces of the community :)

 

If you ever need anything, please don't hesitate to contact us by phone, email, or message!

800-714-5437 - community@parentprojectmd.org

 

 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service