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Kristin Roof-Persons
- Female
- Manassas, VA
- United States
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Kristin Roof-Persons's Discussions
dmd and microcephaly. any other dmd patients with other issues?
Started this discussion. Last reply by Kristin Roof-Persons May 7, 2013. 2 Replies 0 Favorites
i dont even know whitch category to put this discussion in... my son was diagnosed with duchenne in march. we had been seeing a neurologist because he also had microcephaly. we were sent to…Continue
Tags: head, small, microcephaly
22 months... Newly diagnosed
Started this discussion. Last reply by Evelyn Mar 14, 2013. 5 Replies 0 Favorites
I guess I just kinda wanted to introduce myself, my son Finley was just diagnosed with Duchennes. We were absolutely shocked, and while we're just trying to wrap our heads around everything, I've…Continue
Kristin Roof-Persons's Page
Profile Information
- About me:
- I'm a stay at home mom to two awesome boys! We just learned that our youngest son has Duchenne Muscular Dystrophy, hes only 22 months so pretty young. We're still learning about everything...
- Name(s) of child(ren)/individual(s) with Duchenne:
- Finley
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City:
- Manassas
- State:
- Va
Kristin Roof-Persons's Photos
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StaffPPMD said…
Duchenne Care Considerations document:
http://www.parentprojectmd.org/site/PageServer?pagename=Care_elements_considerations
Click the "Family Friendly" link
StaffPPMD said…
Welcome Kristin -- We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.
Hi Kristin!
Just saw your greeting on NOVA. Your sons are precious :). My email is nana6502@gmail.com. phone # 312-725-4292 (we still have IL area code). Feel free to call me if you want to talk to a real live person :). I'm fortunate to be a stay at home mom right now too.