Kristin Roof-Persons
  • Female
  • Manassas, VA
  • United States
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Kristin Roof-Persons's Discussions

dmd and microcephaly. any other dmd patients with other issues?

Started this discussion. Last reply by Kristin Roof-Persons May 7, 2013. 2 Replies

i dont even know whitch category to put this discussion in... my son was diagnosed with duchenne in march.  we had been seeing a neurologist because he also had microcephaly.  we were sent to…Continue

Tags: head, small, microcephaly

22 months... Newly diagnosed

Started this discussion. Last reply by Evelyn Mar 14, 2013. 5 Replies

I guess I just kinda wanted to introduce myself, my son Finley was just diagnosed with Duchennes. We were absolutely shocked, and while we're just trying to wrap our heads around everything, I've…Continue

Tags: virginia, diagnosis, New

 

Kristin Roof-Persons's Page

Profile Information

About me:
I'm a stay at home mom to two awesome boys! We just learned that our youngest son has Duchenne Muscular Dystrophy, hes only 22 months so pretty young. We're still learning about everything...
Name(s) of child(ren)/individual(s) with Duchenne:
Finley
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Manassas
State:
Va

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Comment Wall (3 comments)

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At 1:56pm on March 13, 2013,
Staff
PPMD
said…

Duchenne Care Considerations document: 

http://www.parentprojectmd.org/site/PageServer?pagename=Care_elements_considerations

Click the "Family Friendly" link

At 1:54pm on March 13, 2013,
Staff
PPMD
said…

Welcome Kristin --  We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
 

Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org

 

And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.

At 11:07am on March 13, 2013, Nana said…

Hi Kristin!

Just saw your greeting on NOVA.  Your sons are precious :).  My email is nana6502@gmail.com. phone # 312-725-4292 (we still have IL area code).   Feel free to call me if you want to talk to a real live person :).  I'm fortunate to be a stay at home mom right now too.

 
 
 

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