Mother, peace-maker, best pancake maker, best mom hug giver, school teacher, social worker, dinner-maker, laundry do-er, snot wiper, bathroom cleaner, Dr, therapist, Santa Clause, Tooth Fairy, (not the boogy man) but Boogy man fighter, awards giver....well the list can go on and on...you get the picture!
About my family:
Husband is an RN, I am a Social Worker ( for real), have two children both boys ages 6 ( Keaton) and 10 (Christian). At age 8 my son Christian was diagnosed with Duchenne's Muscular Dystrophy.
Name(s) of child(ren)/individual(s) with Duchenne:
kristi your sonis very handsome. Im hoping that we can have a talk Im not very com. smart. I have written many things but I never get anyones answer. CCaleb and I went to him Pt eval and I came away with tears in my heart thats where I keep them I have never cried for hin becaused we knew when we adopted hin that he had duchennes we have several adopted handicapped child young adults now 5 in chaors but Caleb is my heart we talk about everything but he will not talk about his power chair . he takes it when we go out NOT to school we go around and round about . he falls everyday hurts his kness and has many bands but no to the chair Heis very tired now the problem is he can hardly get on the first step of the bus he tries but can hardly get up getting doen is worse. you would feel so much better if you took your chair no mom I just cant my daus say I shouls just give him no choice the CHAIR or else I find I cant do that the pt told him its time he has declined some much the last three months could you help with any advice? I need it it is so funny how love get in the way of reason hoping to hear from you Penny Hauer
It was good to meet you at MDA Camp last week. When Austin got home he went to his room and started crying because he missed his counselor and his room mates at camp. I guess I am glad that he had so much fun that he cried when it was all over. He is already talking about next year. Do you have to get a team up for the Stride and Ride? What exactly is the Stride and Ride?
Hi Kristi, How are things going? How are they doing on improving Vanderbilt? How is your son doing? Austin is still doing fairly well. He still walks and only needs assistance when he has to walk very long distances.
Hi Kristi: Wow, you are a busy mom - and a great one too! Glad to see you here as well as FB :) Congrats again on your dog. I was about to tell you my friend, Patty, just got a cutie from Canine Campanions too (she posted right below me!!!). Nicholas would love a dog. I have to think that one over for a while. I'll work on the van first - then the dog. Talk to you soon!
I was thinking maybe Monday afternoon? We are going to be in Jackson that night anyway for a birthday party. I had totally forgotten about that McDonalds (I'm guessing you mean the one on Highland?) which would be WAAAYYYY better than the dreaded CEC in my book! LOL. What time are you available? Our party is at 7 I think, so anytime before that would be great. I sent you my cell number in the email, but in case it doesn't ever show up, it's 865-292-8746. Or you can email at firstname.lastname@example.org. Thanks so much for meeting us...I'm really looking forward to it!
Hi Kristi! Yes! I would LOVE to get together. We are actually coming to Lexington/Jackson for Christmas. We'll get in next Sunday and be there all week. Are you guys going to be in town over the holidays? Maybe we (all of us from the Jackson area) should get our boys together next week for a holiday lunch or something? Chuck E Cheese maybe so they could play and we moms could talk? Might be fun! Hope you all had a wonderful weekend and ready for the week ahead. Let me know if you're around or would be interested in getting the kids together. Hugs!