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Kirubha Balakumar
  • Female
  • Bayonne, NJ
  • United States
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Kirubha Balakumar's Discussions

IV port for exon 51

Started this discussion. Last reply by Catherine Lake Jun 2. 1 Reply

Has anyone gotten IV port in the chest for Exondys 51 weekly infusion? how was the procedure? were there any issues after the surgery?

 

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Catherine Lake replied to Kirubha Balakumar's discussion IV port for exon 51
"My son has had his port for a little over a year (he was in the trial).  It's been relatively smooth.  It freaked him out at first (he'd just gotten used to arm pokes) but infusions are no big deal now.  He does…"
Jun 2
Kirubha Balakumar posted a discussion

IV port for exon 51

Has anyone gotten IV port in the chest for Exondys 51 weekly infusion? how was the procedure? were there any issues after the surgery?
May 3
Kirubha Balakumar is now a member of PPMD Community
Apr 7

Profile Information

About me:
mom with dmd kid
Name(s) of child(ren)/individual(s) with Duchenne:
midhun
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Bayonne
State:
NJ

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