married to the love of my life for 30 years have 3 grown children Michael 27 (DMD), Jacob 26 (uneffected) & Nichole 24 (not a carrier) and GrandMom of 1 precious 3 1/2 yr old boy. My eldest son Michael has DMD he has an Exon 55 Insertion I am a carrier of DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
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I am so, so sorry for your loss. I have no idea what I will do when I have to experience this. It's a full time job trying to make the world "accessible" and then it's gone. Much love and lots of hugs, Carol Keskeny firstname.lastname@example.org