Every year on the Saturday night of the Connect Conference, PPMD hosts a final dinner. Usually there is a speaker or two, dinner and drinks and a last moment to talk with friends. Not anymore!Buckle up!This year the…See More
Hello Duchenne community!Summer is just around the corner and with that comes sunshine, fireflies and PPMD’s Annual Connect Conference.We are excited to be back in Baltimore, MD at the beautiful Marriott Waterfront this year and really excited about this year’s program.In 2013…See More
"Thanksgiving at our house is filled with a theatrical flair. After lingering in our pj's for a late morning, putting the turkey in the oven and prepping some of the other goodies we all get dressed in "whatever" we want and head…"
Hi! How have you been. My husband and I are trying to arrange a Coach to Cure event with my daughter's high school. Has it been decided when the 2010 Coach to Cure will be. What type of information do I need to provide the school and/or do they need to give us.
Thanks for your time,
That's okay, please don't worry about it, I just wanted you to know it was coming. Kohl's said they would mail it, but I was just double checking. You should receive the money order for the raffle I did in a few more days. You have a great weekend too.
Kimberly, I just mailed you a money order for an A team Event I did with Kohl's during Coach to Cure MD. I had very high expectations for the money I thought I could raise, however, I did do a lot of educating on what exactly DMD is. Anyway, can you please let me know when you receive the money order. In addition Kohl's should be sending you a check for $500. Can you also let me know when that comes? I may send you an email when the email is working again, so I apologize in advance if I continue to email you. I just want to make sure PPMD gets the money.
I came across your photo as I was reviewing the site. It was great to put a smiling face with the pleasant voice that has assisted me several times. I recall our first conversation shortly after Garin was diagnosed last September. You were such a great support and gave me so much valuable information. I appreciate your help and the efforts of the PPMD organization
My question is about "Coach to Cure MD". Rachel & James are good friends of mine and asked me to send letters to friends asking for a $50 donation to go toward Cure to Cure MD. I've sent the letters and I want to know if they have donated so I can personally thank them. How can I find out?
Thank you for all you do at PPMD!!
Hi Kimberly, I just wanted to let you know that the addition of this social networking format has been phenomenal and I can't tell you how grateful I am. PS Love all you guys at PPMD and thanks for a really helpful and successful conference!
(my husband Evonn is the Duchenne Sucks t-shirt guy)
Congratulations on your 10 years with PPMD. This years conference was a first for me and I did not get to meet you. However, just by seeing you run around the conference I could see that you do alot for PPMD. Thank you for everything you did for the conference. I am so gratefull that there is a place for all parents from all over the world to come together and talk and exchange information. Before I knew about PPMD my husband and I felt very alone. I'm still afraid of what lies ahead for my son, but now there is some hope and I/we don't have to go it alone.