"My son was diagnosed on December 30th. We met with Anne Connolly at St Louis Children's last month along with a PT and orthotist. I left feeling like Dr. Connolly is a caring, kind lady but I also didn't know much more than I…"
Actually, we bought tickets to the Atlanta vs. Red Sox game for Friday night, but later decided that we couldn't afford to pay the registration for me and my hubby and the hotel stay for the entire conference and I have to take alot of time off of work because Riley needs surgery in the next month....sooo, we are driving up to Atlanta Thursday evening and will be there all day Friday and leave Sat since we already had the game tickets. I know it's crazy, but I hated to not use the tickets and my hubby is a HUGE Red Sox fan. We're going up with my sister and best friend; we'll all be staying Friday night at the Regency Downtown. I would love to get together with you all sometime Friday if we can!! I am really hurting that we are not attending the conference. I feel like I am missing out big time! I went to Philly last year and absolutely loved it. I certainly thought I would be there this year (which is why we bought game tickets). I am definately going to save up so we can go next year, I can't imagine missing out again...i did enough crying about it to drive my family crazy. Also, I have been wanting to talk, Riley needs surgery this summer to have his tonsels out and tubes in his ears....I am a nervous reck!! I am so worried about the anesthesia that I have been putting off scheduling it. Well, I hope ya'll have a great time at conference! Please, please fill me in on everything and I hope I get to see ya'll for the short time I'll be there! Call me if you can, 985-713-1634.
good morning, my email is firstname.lastname@example.org my cell is 504-202-2261. i will give you a call today. I will be running errands all day so that will make it easier. can't wait til Wed, weather looks like it is going to be cooler in atlanta than hear (low 90's instead of upper 90's.) Talk to you later.
Hey Kim, Yes, the MDA will pay for the visit with Dr. Wong. i don't know how much they pay (meaning just Dr. Wong, the cardio, the xrays, whatever), but I know that at least the Dr. Wong visit is covered. Also, I know many people get their tests run at home and just bring the results to Dr. Wong, so that is an option as well to keep costs down.
We had a good Christmas. Seph got a 4 wheeler to ride in our yard (we live on 8 acres) and today got his scooter. He loves it. The scooter will be used for now in airports, malls, zoo's really anywhere with lots of walking and the 4 wheeler for play. he is getting too big for the stroller!
Hey Kim! Yes, we are back! We went last week..the 10th through the 14th. I'll have to call you to fill you in. It was a great trip and certainly more than what we got here!!!!!!! I have been crazy trying to get back to 'normal' if there is such a thing! LOL! We have a wedding Sat., but I can call you or you call me on Sunday. I am super sad that I missed meeting you all for the game! So, we definately need to get together!
Actually you can tailgate anywhere but The parking lots have the RV's in them so we will have to set up somewhere else. I think Lori is trying to get by the tiger but it is usually where people are just walking thru. I think there will be too much traffic there. I guess we will see. We aren't going to the game either, unless some miracle happens and we get tickets. They are hard to come by even if it is not a big game, like Georgia. We can't wait to meet everyone either. Talk to you soon. I have your 225 number but what is your cell? I remember it started with another area code, but I did not save it.
So I guess ya'll are going to tailgate too, after reading Lori's comments. I could not remember if we discussed that the other day. Are you bringing the kids? I think we will bring Wyatt. We just don't know where we are going to watch the game. I heard tickets are around $300. Keep in touch.