Kimberly- Great to hear from you! Humour is never a bad thing if shared with taste, as I know you would. I too have been focussed upon documenting my life with DMD. The title has drifted about over the years but I still look towards- "Seasons of a Son" as the article in my intro is a foundation to prepare a prologue for a book. words can be a very theraputic medium, both for author and reader. i have found journalling a very helpful tool as well- More personal but really a wonderful of organizing ones mix of thought.

It would be nice to keep in touch. My email is rnrhoffman@shaw.ca if this works better.
Sincerely, Robyn

Hello Kimberly;
You have such a positive outlook- I commend you!
As a Mom with a nearly 32 year old I see the world of DMD differently than most mom's of younger sons. Many of my early worries are now back in the lime light with his worries but- he has shown me such optimism and openness in dealing with this disease! I would love to get to know you. Have a look at my page for our family story-
regards, Robyn

How has this effected your Marriage, my husband is leaving after 20 years of marriage. He can't cope anymore. I saw if coming for about 13 years now, but it is still hard to handle. Any advice????

Just wanted to say "hi." As soon as I read your bio, I thought of my grandma, who also had three boys with DMD (had 10 children total). I am inspired by your attitude -- my husband and I are also trying to be very positive, but it's easy to get into a negative mode!

Hi,
You must be a very strong woman. My seven year old was diagnosed in July. I also have a 18 month old who may have this as well.
You have brought me some faith that we will get through this. God bless!!!!

Hi Kimberley,
I was wondering what kind of exercise (& how often) did your boys exercise? My son seems to get weaker everyday, he is very skinny & just turned 10. I have to pull him to sitting position when he wakes up in the morning. We haven't had him in swimming in about 6 months (twice weekly for 40 min). My youngest boy was diagnosed a few weeks ago also, he is 3. I feel like I don't have it together w/ exercises. Thanks for your posting, I also try to stay positive although some days I feel very sad.

Hi Kimberly ,
wow 3 boys with dmd dont know how you do it i guess it true someone else always have it worse i have a son 22 with dmd and im his full time care giver and my husband is a huge help and we also get 12 hrs of respite nursing .do you have family support or good friends we have a very caring family but not much help they all say need any thing just call yea right but thats ok i guess id probably rather do things my self! thats awesome your sons going to be a sports caster my son would love that he is a sports fanatic especially football but he does have a part time job he write a sports news for our county special olympics .
Diane

I just came across your information. Three boys with DMD! I cannot imagine, as I am dealing with the first year of knowing the diagnosis and know the heartbreak that comes with that. I wish you and your family the very best!

Thanks for the pants. Shawn thought they are really cool. Shawn's IEP meeting went really well yesterday. Planning to start CNA October 6. How was the telethon? We had fun camping.Talk to you soon.