I am currently working as a CNA for my boys and as a personal trainer at the Brighton Rec Center. I am specializing in training special populations.
About my family:
My husband, Brian and I have been married 23 years. We have three boys. Ryan is 23 and attends Metro State College studying to become a sportscaster, Aaron is 21 and also attends Metro State College studying computer animation and videogame development. Ian is 19 and is attending Metro State for a degree in forensics.
Name(s) of child(ren)/individual(s) with Duchenne:
Ryan 23, Aaron, 21, Ian 19
Age(s) of child(ren)/individual(s) with Duchenne:
13-18, 19 or older
Comment Wall (11 comments)
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Kimberly- Great to hear from you! Humour is never a bad thing if shared with taste, as I know you would. I too have been focussed upon documenting my life with DMD. The title has drifted about over the years but I still look towards- "Seasons of a Son" as the article in my intro is a foundation to prepare a prologue for a book. words can be a very theraputic medium, both for author and reader. i have found journalling a very helpful tool as well- More personal but really a wonderful of organizing ones mix of thought.
It would be nice to keep in touch. My email is firstname.lastname@example.org if this works better.
You have such a positive outlook- I commend you!
As a Mom with a nearly 32 year old I see the world of DMD differently than most mom's of younger sons. Many of my early worries are now back in the lime light with his worries but- he has shown me such optimism and openness in dealing with this disease! I would love to get to know you. Have a look at my page for our family story-
Just wanted to say "hi." As soon as I read your bio, I thought of my grandma, who also had three boys with DMD (had 10 children total). I am inspired by your attitude -- my husband and I are also trying to be very positive, but it's easy to get into a negative mode!
You must be a very strong woman. My seven year old was diagnosed in July. I also have a 18 month old who may have this as well.
You have brought me some faith that we will get through this. God bless!!!!
I was wondering what kind of exercise (& how often) did your boys exercise? My son seems to get weaker everyday, he is very skinny & just turned 10. I have to pull him to sitting position when he wakes up in the morning. We haven't had him in swimming in about 6 months (twice weekly for 40 min). My youngest boy was diagnosed a few weeks ago also, he is 3. I feel like I don't have it together w/ exercises. Thanks for your posting, I also try to stay positive although some days I feel very sad.
Hi Kimberly ,
wow 3 boys with dmd dont know how you do it i guess it true someone else always have it worse i have a son 22 with dmd and im his full time care giver and my husband is a huge help and we also get 12 hrs of respite nursing .do you have family support or good friends we have a very caring family but not much help they all say need any thing just call yea right but thats ok i guess id probably rather do things my self! thats awesome your sons going to be a sports caster my son would love that he is a sports fanatic especially football but he does have a part time job he write a sports news for our county special olympics .
I just came across your information. Three boys with DMD! I cannot imagine, as I am dealing with the first year of knowing the diagnosis and know the heartbreak that comes with that. I wish you and your family the very best!