"That is great, he is doing very well. Make the most of these walking years, I regret not doing more with my son while he was still ambulatory. There is still so much your son can do. My son was using his wheelchair full time by age 12. I think he…"
My heart goes out to you for your loss and all your pain. My 13 year old son also has Duchenne's and we too have experienced a great range of emotions. What has brought us comfort is having clear concrete answers to the very…"
I loved the way you answered your sons questions. I know the feelings that well up in our hearts when our beautiful boys ask these questions but you handled it so well. I hope I can do the same. "