Kevin Smith
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  • Valrico Florida
  • United States
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Kevin Smith's Groups

 

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Latest Activity

Chris Diemler replied to Kevin Smith's discussion Dads your not alone in the group Dad's Only
"Hello Dean.  Sounds like a nice, and big family.  I've been married for almost 10 years now.  My son, Henry will be 6 on St. Patricks day and I have a 2 year old daughter, Lucy.  I am very interested in what the other…"
Nov 29, 2012
Dean Johnson replied to Kevin Smith's discussion Dads your not alone in the group Dad's Only
"Hey fellow dads. I'm really excited about keeping this thread going. I have 2 girls and 3 boys (the oldest boy, Henry, 11, with DMD). I have been married for 21 years and there are a myriad of issues I would like to discuss -- time management,…"
Nov 29, 2012
Kevin Smith commented on Pat Furlong's blog post Redefining Normal
"I prepare as much of the food as possible the day before to be oven ready in the morning.  We have family over that lives here in FL.  We eat around 1:00, clean up, then most everybody leaves shortly after dessert.  Some of them work…"
Nov 23, 2011

Profile Information

About me:
I run the Disney Marathons in Orlando every year since we started them to raise money for research so the boys can have a better life. Listen up dads! You have to take a stand! You have to make a difference! You have to fight for your son! If not now, then when? If not you, then who?

Hobbies are Antique cars and Pinball and Jukebox restoration.
About my family:
I have been married 107 Years ug. I have a 16 year old Son Zachary and a 12 year old daughter Raegan.
Name(s) of child(ren)/individual(s) with Duchenne:
Zachary
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Valrico Florida

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Comment Wall (13 comments)

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At 5:00am on January 22, 2017, Margarita Yashchenko said…

             My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 9,5 years old.  I would like to communicate with the American parents on the skype: alina 1998831. My email: my.science@mail.ru. Please, call me I will be waite.  I am sorry, I lern  an English only, so I do mistakes. 

At 8:19am on September 30, 2010, Chance Showell said…
Heck no! It's a BMW. Do you have a Facebook page? How is the gang? What is you number? Call me dude!
At 4:08pm on September 28, 2010, Chance Showell said…
Kevin... Please give me a call at 407-766-5509.
At 12:59am on May 23, 2010, Leslie Guzman said…
Hi Kevin,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 11:35pm on June 30, 2009, Shawn Jessica and Joshua Arndt said…
Hi,
We met you at last years connect conference. we have a few questions about remodeling/ or building. Jess
At 11:28am on September 3, 2008, Dee said…
HI Kevin....have not heard or seen you around for a while but so glad to see your page/profile up. Sounds like you are keeping yourself pretty busy and active!

Safe hugz to you and your family!
At 9:15am on August 15, 2008, Chance Showell said…
Kevin, So glad that you sent me this link. I keep a picture of your family in the kitchen, I pray daily for healing for Zachary and for you to have the strength to keep fighting and working toward a cure.
God Bless!
At 10:02pm on August 11, 2008, Jennifer Collier said…
Hi Kevin - We're in Florida too. Where's Valrico? We are in St. Augustine. I am trying to get my husband involved in PPMD. Our son Ryan was diagnosed with DMD in May. He will be three at the end of this month.
At 10:53am on August 11, 2008, Kari said…
Awesome Kevin. Thank you so much. This Dad's group is going to be great!
At 11:01pm on August 10, 2008, Rhiannon Traigle said…
Kevin,
Just stopping by your page...I like to see what dads are up to (relay the message to my hubby for encouragement). Looks like you and Zachary have an awesome relationship! LOVE, LOVE, LOVE Batman and Robin!!! Oh, and we have a Reagan too! She'll be 10 in January.
 
 
 

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