Well, where should i start? I guess the reason i got on here is... I had an AMAZING brother named Kenny Sahagun. He passed away on March 31, 2007 at 16 years old. He was everything i could have asked for in a brother. He was Smart, Funny and Loving. I never thought about what it would be like to not have him in my life. Me being the only child now has been really hard on me. There is not one day that goes by where i don't think of him. i wonder what he would be like or what he would look like. He has made me the person i am today.
Name(s) of child(ren)/individual(s) with Duchenne:
hi kelsy. its hoops season...time for the lake show to make another run. wanted to say whassup and that i hope you and the fam are all doing well. ur a great kid, take care of urself.
I requested to add you as a friend. My daughter Kellie just signed up for an account. I told her about you. Her profile names is Kory's Sister and she is also under "my friends" list on my profile. I thought since both of you had brothers that lost their battle last year to this disease you might could talk. Kory was 16 too. I talk back and forth with your mom Mary.
I need to update my pictures. The pictures are of my friend David Feder and Ana Lucia and their three children. I met them in SF this past December with my son Nicholas. Nick is in the group picture to the far right hand side. I am in the pictures talking to David. I have the reddish hair.
Hi Kelsey! I read your profile and looked at your pictures. I saw Kenny on your mom's page and knew that he had passed last March. It appears that you and Kenny really loved being with each other and had a strong and loving bond. I think of my grandchildren when I see the pictures of you and Kenny together. You can see them on Rhiannon Traigle's (my daughter) page because I haven't added photos yet. My grandson, Riley, is 5 years old and has DMD and his sister, Reagan, is 9 years old. They are about the same distance in age as you and Kenny. In your profile you stated that now being the only child is really hard. When I think of the future, I think about Reagan being in the same position you are now in. As a matter of a fact, Rhiannon and I spoke of you and Kenny and Reagan and Riley today. Rhi is struggling with the decision to have another child (depending if she is a carrier) and the effects it may have on Riley if she does and the effects it may have on Reagan if she doesn't. I thank you for being a part of PPMD. We always hear and share the views of the parents and grandparents but hearing from the siblings are just as important. I hope to hear from you again. Have a wonderful day!
Used to be a Rams/Chargers fan until the goats moved...just Chargers now. Looks like they may move one day too...I am hoping to LA so all my teams are in the same city and I can still be close enough to drive north to a game from time to time.
As for ur Angels, I am running thru their stadium in the Disneyland 1/2 Marathon for PPMD during Labor Day weekend. They say it's good luck to touch the left foul pole...I was thinking I should stick a Dodgers logo on it as I go by...what do you think?
just kidding...i'll give a little "shout out" to all the boys instead.
Take care,
Christian (stop talking sports...i'll go on and on and on and...)
we'll see...between the strike and their losing ways, it's not watchable...especially 1 and 2 goal games.
btw, I seen another pic with ur bro wearin' an Angels jersey...uh oh....i'll just say that my wife's an Angels fan too...we butt heads on this one. ;-)
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Mom
I requested to add you as a friend. My daughter Kellie just signed up for an account. I told her about you. Her profile names is Kory's Sister and she is also under "my friends" list on my profile. I thought since both of you had brothers that lost their battle last year to this disease you might could talk. Kory was 16 too. I talk back and forth with your mom Mary.
Love,
Kim
I need to update my pictures. The pictures are of my friend David Feder and Ana Lucia and their three children. I met them in SF this past December with my son Nicholas. Nick is in the group picture to the far right hand side. I am in the pictures talking to David. I have the reddish hair.
I need to update my pictures.
I hope all is well.
Take care,
Julie
Marla Tabor
Used to be a Rams/Chargers fan until the goats moved...just Chargers now. Looks like they may move one day too...I am hoping to LA so all my teams are in the same city and I can still be close enough to drive north to a game from time to time.
As for ur Angels, I am running thru their stadium in the Disneyland 1/2 Marathon for PPMD during Labor Day weekend. They say it's good luck to touch the left foul pole...I was thinking I should stick a Dodgers logo on it as I go by...what do you think?
just kidding...i'll give a little "shout out" to all the boys instead.
Take care,
Christian (stop talking sports...i'll go on and on and on and...)
btw, I seen another pic with ur bro wearin' an Angels jersey...uh oh....i'll just say that my wife's an Angels fan too...we butt heads on this one. ;-)
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