My son with DMD is 10 and is now in a power chair full time. He is having a hard time balancing when we stand him up to take a step or two from wheelchair to toilet. im wondering if we need to…Continue
"my son graduated high school this year and all through middle and high school the staff have been able to assist him in the bathroom in high school he reached 180 lbs and still were able to assist with a hoyer lift or just having him go in an…"
My son with DMD is 10 and is now in a power chair full time. He is having a hard time balancing when we stand him up to take a step or two from wheelchair to toilet. im wondering if we need to consider a condom catheter urinal at school. To use a regular urinal, I will need to get him adaptive clothing. That's an option too. Can anyone tell me what works well? He is already over 100 lbs and I'm afraid the special Ed aide will not be able to continue transferring him. Thanks!
I am a mom to 4 beautiful children. I homeschool and trust God with our son's diagnosis of DMD.
About my family:
I have been married to my best friend for 16 years and we have 2 bio kids and 2 kiddos adopted from Ethiopia. After we adopted our 2 younger children, we faced the diagnosis of DMD. Malachi "Kye" was diagnosed when he turned 4, one year after his adoption. We are glad to have a wonderful family and church support group and look forward to getting to know the PPmD community as well!
Name(s) of child(ren)/individual(s) with Duchenne:
Malachi "Kye" Jacoby
Age(s) of child(ren)/individual(s) with Duchenne:
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