My name is Kelli. My husband, Rich and I have been married since 2001, and we have two wonderful sons, Logan and Ethan. I recently received a Master of Arts degree in Education and enjoy teaching elementary children. Making this career change has allowed me to spend more time with my family, and I am very grateful.
About my family:
Logan (7 years old) was diagnosed with BMD on September 13, 2010. My 5 year old, Ethan, does not show any signs or symptoms of BMD at this time.
Name(s) of child(ren)/individual(s) with Duchenne:
My son has BMD diagnosed by Dr Flanigans DNA test. He was first diagnosed at 31 years old. He is now 45 & still walks. However, he does have a CRT-D, a 4 lead Cardiac Resynchronization Therapy Defibrilator. He sees a electro-physiologist, a cardiologist specializing in the electrical functions of the heart in addition to a cardiologist. I was told in many Beckers patients the heart problems precede the ambulatory problems. Without the CRT-D I don't think he would be with us but I'm sure your child has a long way to go before need such a thing. I pray for all BMD & DMD boys, so that includes your son.