Keith Van Houten's Friends

Keith Van Houten's Groups

Started this discussion. Last reply by Liisa Underwood Jul 18, 2011. 3 Replies 0 Favorites

Started this discussion. Last reply by Keith Van Houten Mar 20, 2011. 2 Replies 0 Favorites

Started Nov 1, 2010 0 Replies 0 Favorites

About my family:: My wife, Julie, and I grew up in New Jersey. We now live in the Detroit suburbs and have been married for 20 years. We both work as engineers in the automotive industry. We have two sons, age 12 and 15.

We visit Cincinnati Children's Hospital for our primary MD related care. We also use the Pediatric Neuromuscular Clinic at the University of Michigan, and have been to the Children's Hospital of Michigan MDA clinic.

Name(s) of child(ren)/individual(s) with Duchenne:: Kyle, age 12. He has an in-frame exon 5 deletion with a DMD phenotype.

At 12:49pm on April 17, 2012, Tammy Henegar said…: Sherri and Sara... I wanted to invite you to a meeting that has been offered to us to hear about the latest reserach in Duchenne. We are near Toledo, Ohio and it seems as though you are in Michigan. The meeting is next Thursday @ 6:30pm at The Hilton Garden at Levis Commons in Perrysburg Ohio. I can e-mail you this information if you would like. Please e-mail me at thenegar2000@hotmail.com.

At 8:30pm on April 2, 2012, Elizabeth Ewanick said…: Of course Keith....I'm still trying to figure out this website and how to use it! I didn't realize I had already made a connection. Hope to see you and Julie soon! Will you be at the Team Joseph family run in Birmingham? Take care and we are in it to beat it!!!

At 10:18am on September 1, 2011, Sara Savalli said…: hello, I can not remember it way a long time ago, but was it you that was willing to come help me do something for my son's school/cubscouts about duchenne for the kids? if so would you still be willing to do something like this, we have just moved to a different school district entirely, and I would love to do something for the other kids to have an understanding, and so when they see jonathan maybe deter some picking on when he falls and things like that. i feel we need to do something, so maybe next time he actually does get hurt, he won't feel he has to hide the fact he is hurt, well something... like he did last year at old school, he actually fell on the playground, when he was suppost to have a para pro who was "busy with other kids" at the time, and he fractured his vertebra, and just got up and they let him, he told me he didn't want to get picked on by the other kids so he pretended it didn't hurt. i wanted to kill the adults at the school who let him just get up also. i have wanted to do something like this for a while now, i just don't know where to start, what to say, ect..