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Kathi Kinnett
  • Female
  • Cincinnati, OH
  • United States
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Kathi Kinnett's Discussions

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

Started this discussion. Last reply by Tina Tsonis Oct 18, 2013. 25 Replies

If you had a chance to ask researchers, providers or industry any question at all about…Continue

Tags: questions, conference, Staff, Duchenne, researchers

 

Kathi Kinnett, Vice President, Clinical Care

Profile Information

About me:
Sr. Vice President, Clinical Care
i have been engaged with the Duchenne community for more than 20 years. I worked as a Pediatric Nurse Practioner at Cincinnati Children's Hospital with their neuromuscular team before joining PPMD. I am thrilled to be a part of this amazing communtiy and will dedicate my efforts to making sure that you and/your child are receiveing the best possible care.
About my family:
i have 2 beautiful grown daughters, 2 amazing son-in-laws, and 3 grandchildren that i treasure <3
City:
Cincinnati
State:
Ohio

Kathi Kinnett's Blog

PPMD & NIH to Host “Contractures in Duchenne and Other Neuromuscular Conditions”

Posted on April 19, 2018 at 9:30am 0 Comments

 

PPMD and NIH are convening a group of more than 60 researchers, post-docs, neurologists, surgeons, industry partners, physiatrists, and physical therapists on April 19-20, 2018, who have experience and expertise in the development, prevention, and management of contractures to discuss these critical…

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Why is Bone Health Important?

Posted on April 11, 2018 at 9:30am 0 Comments

Just like a house needs a stable frame, your body needs a stable skeleton. Bone health is important for anyone living with Duchenne, whether walking (ambulatory) or those no longer able to walk without the assistance of a wheelchair or scooter (non-ambulatory). People of all ages living with Duchenne have weak…

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Center Directors Publish Collective Statement Regarding Patient Access to Approved Therapies

Posted on March 27, 2018 at 9:00am 0 Comments

PPMD is proud to announce the publication of a collective statement regarding patient access to approved therapies from the center directors of our Certified Duchenne Care…

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Duchenne Pulmonary Awareness Video Series

Posted on March 13, 2018 at 9:30am 0 Comments

Pulmonary management in Duchenne (all of the care involved with breathing and coughing) can be confusing and difficult to understand. There are many terms, abbreviations, and procedures that all sound very complicated. PPMD – with support from Santhera Pharmaceuticals and input from a panel of parents,…

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Latest Activity


Staff
Kathi Kinnett posted a blog post

PPMD & NIH to Host “Contractures in Duchenne and Other Neuromuscular Conditions”

 PPMD and NIH are convening a group of more than 60 researchers, post-docs, neurologists, surgeons, industry partners, physiatrists, and physical therapists on April 19-20, 2018, who have experience and expertise in the development, prevention, and management of contractures to discuss these critical issues. We just don’t know…See More
Thursday

Staff
Kathi Kinnett posted a blog post

Why is Bone Health Important?

Just like a house needs a stable frame, your body needs a stable skeleton. Bone health is important for anyone living with Duchenne, whether walking (ambulatory) or those no longer able to walk without the assistance of a wheelchair or scooter (non-ambulatory). People of all ages living with Duchenne have weak bones, especially if…See More
Apr 11

Staff
Kathi Kinnett posted a blog post

Center Directors Publish Collective Statement Regarding Patient Access to Approved Therapies

PPMD is proud to announce the publication of a collective statement regarding patient access to approved therapies from the center directors of our Certified Duchenne Care Centers.There are many ongoing…See More
Mar 27
brian phillip nicholoff favorited Kathi Kinnett's blog post Duchenne Pulmonary Awareness Video Series
Mar 13

Staff
Kathi Kinnett posted a blog post

Duchenne Pulmonary Awareness Video Series

Pulmonary management in Duchenne (all of the care involved with breathing and coughing) can be confusing and difficult to understand. There are many terms, abbreviations, and procedures that all sound very complicated. PPMD – with support from Santhera Pharmaceuticals and input from a panel of parents, patients, and pulmonologists – has created a series of…See More
Mar 13

Staff
Kathi Kinnett posted a blog post

From our Hearts to Yours — Updates in Duchenne Cardiac Care Guidelines

Care for the heart has long been a priority for PPMD. Over the past several years, PPMD’s Cardiac Initiative has given rise to:A meeting convened in partnership with the National Heart Lung and Blood…See More
Feb 7

Staff
Kathi Kinnett replied to ahmed Sayed Abdel Gawad's discussion low back pain
"Most low back pain is positional (sitting in unusual ways that put undue stress on muscles that may not be used to, or capable of, tolerating that stress.  You should consult your rehabilitation team (physical therapist, physiatrist (Physical…"
Feb 5
Margarita Yashchenko favorited Kathi Kinnett's profile
Feb 2

Staff
Kathi Kinnett posted a blog post

Updated Care Consideration Guidelines for Duchenne Published

PPMD is thrilled to announce that after many years in development, the Centers for Disease Control (CDC) has published updated Care Considerations for Duchenne in The Lancet Neurology. These articles are also now…See More
Jan 24

Staff
Kathi Kinnett shared their blog post on Facebook
Jan 10

Staff
Kathi Kinnett posted a blog post

PPMD's Certified Duchenne Care Center Program – 2017 Impact & Progress

PPMD's Certified Duchenne Care Center (CDCC) Program was developed to make comprehensive Duchenne care and services, provided in agreement with the…See More
Jan 8
brian phillip nicholoff favorited Kathi Kinnett's blog post Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol"
Dec 15, 2017

Staff
Kathi Kinnett posted a blog post

Making Duchenne Care and Clinical Trials Better – Globally

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure him.A physical therapy student in Turkey who wants to learn all she can to help the…See More
Dec 5, 2017

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Albuquerque, NM

On November 4, PPMD had the pleasure of working with the parents and providers of New Mexico to present our final Every Single One Tour stop of 2017 (click here for a preview of our 2018 Tour…See More
Nov 20, 2017

Staff
Kathi Kinnett is attending PPMD's event

For Clinicians: PPMD Duchenne Clinician Care Conference at Sanibel, FL

January 24, 2018 to January 26, 2018
This year, PPMD will be hosting our first Duchenne Clinician Conference, January 24-26, 2018 at the Marriott Harbor in Sanibel, FL. Registration is now open.This conference will provide up to date clinical education, resources, materials and networking, supporting your ability to provide the very best care to your patients and families living with Duchenne.Our robust agenda will cover comprehensive care and…See More
Oct 17, 2017
brian phillip nicholoff favorited Kathi Kinnett's blog post PJ Nicholoff Steroid Protocol Published
Oct 16, 2017

Comment Wall (4 comments)

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At 6:20pm on April 17, 2014, kimmy watters said…

  hi kathi its  the new drug  i have issue with spelling  eleplrin , that the fda has not approve yet.  my question is that  drug will it  help the boys that are in wheel chair. kimmy

At 6:26pm on April 16, 2014, kimmy watters said…

 hi kathi my name is kimmy watters thank you for  what  you do for parent project,. with this new drug will it  our boys who are now in wheelchair. kimmy

At 11:26pm on May 7, 2012, Thomas Hoel said…
So, were you a human GPS for Pat on the walk through the canyon?  Proud of you guys.  I'll bet you two were like Thelma and Louise, light. What an awsome accomplishmemt!!
At 10:52pm on April 4, 2012, Thomas Hoel said…
Glad to have you "officially" on board at PPMD Kathi! Your knowlege, experience, empathy and passion can help so many more families now.
 
 
 

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