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Kathi Kinnett
  • Female
  • Cincinnati, OH
  • United States
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Kathi Kinnett's Discussions

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

Started this discussion. Last reply by Tina Tsonis Oct 18, 2013. 25 Replies

If you had a chance to ask researchers, providers or industry any question at all about…Continue

Tags: questions, conference, Staff, Duchenne, researchers

 

Kathi Kinnett, Vice President, Clinical Care

Profile Information

About me:
Sr. Vice President, Clinical Care
i have been engaged with the Duchenne community for more than 20 years. I worked as a Pediatric Nurse Practioner at Cincinnati Children's Hospital with their neuromuscular team before joining PPMD. I am thrilled to be a part of this amazing communtiy and will dedicate my efforts to making sure that you and/your child are receiveing the best possible care.
About my family:
i have 2 beautiful grown daughters, 2 amazing son-in-laws, and 3 grandchildren that i treasure <3
City:
Cincinnati
State:
Ohio

Kathi Kinnett's Blog

From our Hearts to Yours — Updates in Duchenne Cardiac Care Guidelines

Posted on February 7, 2018 at 1:31pm 0 Comments

Care for the heart has long been a priority for PPMD. Over the past several years, PPMD’s Cardiac Initiative has given rise to:



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Updated Care Consideration Guidelines for Duchenne Published

Posted on January 24, 2018 at 10:30am 0 Comments

PPMD is thrilled to announce that after many years in development, the Centers for Disease Control (CDC) has published updated Care Considerations for Duchenne in The Lancet…

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PPMD's Certified Duchenne Care Center Program – 2017 Impact & Progress

Posted on January 8, 2018 at 4:30pm 0 Comments

PPMD's Certified Duchenne Care Center (CDCC) Program was developed to make comprehensive Duchenne care and services, provided in agreement with the…

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What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)

Posted on December 21, 2017 at 10:30am 0 Comments

Viral gastrointestinal (GI) viruses are no fun for anyone, but they are especially worrisome for a person living with Duchenne muscular dystrophy. GI viruses affect the GI track – the stomach and intestine (i.e., ‘gut’) – resulting in abdominal pain/discomfort, nausea, vomiting, intestinal…

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Latest Activity


Staff
Kathi Kinnett posted a blog post

From our Hearts to Yours — Updates in Duchenne Cardiac Care Guidelines

Care for the heart has long been a priority for PPMD. Over the past several years, PPMD’s Cardiac Initiative has given rise to:A meeting convened in partnership with the National Heart Lung and Blood…See More
Feb 7

Staff
Kathi Kinnett replied to ahmed Sayed Abdel Gawad's discussion low back pain
"Most low back pain is positional (sitting in unusual ways that put undue stress on muscles that may not be used to, or capable of, tolerating that stress.  You should consult your rehabilitation team (physical therapist, physiatrist (Physical…"
Feb 5
Margarita Yashchenko favorited Kathi Kinnett's profile
Feb 2

Staff
Kathi Kinnett posted a blog post

Updated Care Consideration Guidelines for Duchenne Published

PPMD is thrilled to announce that after many years in development, the Centers for Disease Control (CDC) has published updated Care Considerations for Duchenne in The Lancet Neurology. These articles are also now…See More
Jan 24

Staff
Kathi Kinnett shared their blog post on Facebook
Jan 10

Staff
Kathi Kinnett posted a blog post

PPMD's Certified Duchenne Care Center Program – 2017 Impact & Progress

PPMD's Certified Duchenne Care Center (CDCC) Program was developed to make comprehensive Duchenne care and services, provided in agreement with the…See More
Jan 8
brian phillip nicholoff favorited Kathi Kinnett's blog post Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol"
Dec 15, 2017

Staff
Kathi Kinnett posted a blog post

Making Duchenne Care and Clinical Trials Better – Globally

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure him.A physical therapy student in Turkey who wants to learn all she can to help the…See More
Dec 5, 2017

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Albuquerque, NM

On November 4, PPMD had the pleasure of working with the parents and providers of New Mexico to present our final Every Single One Tour stop of 2017 (click here for a preview of our 2018 Tour…See More
Nov 20, 2017

Staff
Kathi Kinnett is attending PPMD's event

For Clinicians: PPMD Duchenne Clinician Care Conference at Sanibel, FL

January 24, 2018 to January 26, 2018
This year, PPMD will be hosting our first Duchenne Clinician Conference, January 24-26, 2018 at the Marriott Harbor in Sanibel, FL. Registration is now open.This conference will provide up to date clinical education, resources, materials and networking, supporting your ability to provide the very best care to your patients and families living with Duchenne.Our robust agenda will cover comprehensive care and…See More
Oct 17, 2017
brian phillip nicholoff favorited Kathi Kinnett's blog post PJ Nicholoff Steroid Protocol Published
Oct 16, 2017

Staff
Kathi Kinnett posted a blog post

Steroid Dosing & Duchenne: FAQs

Steroid dosing in Duchenne can be a confusing topic – what is enough, what is too much, why weekend doses are higher. With these frequently asked questions I’ve heard from the community in mind, I reached out for…See More
Oct 5, 2017
Mariana Mitreva favorited Kathi Kinnett's blog post Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol"
Oct 4, 2017

Staff
Kathi Kinnett posted a blog post

In an Emergency – Consider a Medical ID

Let’s say that Joe has Duchenne. If Joe breaks his arm and the EMT comes before Joe’s parent arrives, Joe may not remember to tell the EMT that: 1) he has Duchenne, 2) he is on daily steroids 3) he is allergic to penicillin and, in that painful scary moment, he may or may not remember his parent’s cell phone…See More
Sep 22, 2017

Staff
Kathi Kinnett posted a blog post

2017/2018 Flu Vaccination Recommendations

Everyone, six months of age and older, needs to be vaccinated against influenza (flu) by the end of October, if possible. Protecting people living with Duchenne is especially important. A 2005 study…See More
Sep 18, 2017

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Charleston, WV

We kicked off our fall Every Single One Tour stops in West Virginia this past weekend! We appreciate all of the families, speakers, and volunteers that spent the day with us in Charleston. Psychosocial Issues in Duchenne…See More
Sep 13, 2017

Comment Wall (4 comments)

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At 6:20pm on April 17, 2014, kimmy watters said…

  hi kathi its  the new drug  i have issue with spelling  eleplrin , that the fda has not approve yet.  my question is that  drug will it  help the boys that are in wheel chair. kimmy

At 6:26pm on April 16, 2014, kimmy watters said…

 hi kathi my name is kimmy watters thank you for  what  you do for parent project,. with this new drug will it  our boys who are now in wheelchair. kimmy

At 11:26pm on May 7, 2012, Thomas Hoel said…
So, were you a human GPS for Pat on the walk through the canyon?  Proud of you guys.  I'll bet you two were like Thelma and Louise, light. What an awsome accomplishmemt!!
At 10:52pm on April 4, 2012, Thomas Hoel said…
Glad to have you "officially" on board at PPMD Kathi! Your knowlege, experience, empathy and passion can help so many more families now.
 
 
 

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