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Kathi Kinnett
  • Female
  • Cincinnati, OH
  • United States
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Kathi Kinnett's Discussions

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

Started this discussion. Last reply by Tina Tsonis Oct 18, 2013. 25 Replies

If you had a chance to ask researchers, providers or industry any question at all about…Continue

Tags: questions, conference, Staff, Duchenne, researchers

 

Kathi Kinnett, Vice President, Clinical Care

Profile Information

About me:
Sr. Vice President, Clinical Care
i have been engaged with the Duchenne community for more than 20 years. I worked as a Pediatric Nurse Practioner at Cincinnati Children's Hospital with their neuromuscular team before joining PPMD. I am thrilled to be a part of this amazing communtiy and will dedicate my efforts to making sure that you and/your child are receiveing the best possible care.
About my family:
i have 2 beautiful grown daughters, 2 amazing son-in-laws, and 3 grandchildren that i treasure <3
City:
Cincinnati
State:
Ohio

Kathi Kinnett's Blog

Finding Your Light: Fighting Depression in Duchenne

Posted on May 25, 2017 at 11:00am 0 Comments

PPMD's Kathi Kinnett, MSN, CNP worked with Molly Colvin, PhD, Neuropsychologist at Massachusetts General Hospital and Ginny Ward, an amazing mom living in Colorado with her children, including John, a young man living with Duchenne, to develop this important material. …

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PPMD Convenes Meeting to Explore the Burden of Pediatric Clinical Trials

Posted on April 20, 2017 at 12:30pm 0 Comments

The Duchenne community has waited 20 years to be where we are. We are reminded daily of how far we have come, how the landscape has changed, how there are close to 20 clinical trials to choose from. While these changes within are landscape bring us to a hopeful time in Duchenne, the journey to…

Continue

ENMC Workshop Report: Airway Clearance Techniques in Neuromuscular Disorders

Posted on March 17, 2017 at 4:00pm 0 Comments

The European Neuromuscular Center (ENMC) is a global organization that gathers expertise from around the world to address many issues and concerns of, and advance research and treatments for, neuromuscular…

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What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)

Posted on January 4, 2017 at 10:30am 0 Comments

Viral gastrointestinal (GI) viruses are no fun for anyone, but they are especially worrisome for a person living with Duchenne muscular dystrophy. GI viruses affect the GI track – the stomach and intestine (i.e., ‘gut’) – resulting in abdominal pain/discomfort, nausea, vomiting, intestinal…

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Latest Activity


Staff
Kathi Kinnett posted a blog post

Finding Your Light: Fighting Depression in Duchenne

PPMD's Kathi Kinnett, MSN, CNP worked with Molly Colvin, PhD, Neuropsychologist at Massachusetts General Hospital and Ginny Ward, an amazing mom living in Colorado with her children, including John, a young man living with Duchenne, to develop this important material. Life is hard, and parts of life are really, really…See More
May 25

Staff
Kathi Kinnett posted a blog post

PPMD Convenes Meeting to Explore the Burden of Pediatric Clinical Trials

The Duchenne community has waited 20 years to be where we are. We are reminded daily of how far we have come, how the landscape has changed, how there are close to 20 clinical trials to choose from. While these changes within are landscape bring us to a hopeful time in Duchenne, the journey to this point has not been…See More
Apr 20
Brid Murray favorited Kathi Kinnett's blog post Duchenne Carrier Study at Nationwide Children’s Hospital
Feb 24

Staff
Kathi Kinnett's blog post was featured

What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)

Viral gastrointestinal (GI) viruses are no fun for anyone, but they are especially worrisome for a person living with Duchenne muscular dystrophy. GI viruses affect the GI track – the stomach and intestine (i.e., ‘gut’) – resulting in abdominal pain/discomfort, nausea, vomiting, intestinal pain/discomfort, cramps and…See More
Jan 4

Staff
Kathi Kinnett posted a blog post

What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)

Viral gastrointestinal (GI) viruses are no fun for anyone, but they are especially worrisome for a person living with Duchenne muscular dystrophy. GI viruses affect the GI track – the stomach and intestine (i.e., ‘gut’) – resulting in abdominal pain/discomfort, nausea, vomiting, intestinal pain/discomfort, cramps and…See More
Jan 4

Staff
Kathi Kinnett posted a blog post

[FOR CLINICIANS] The Emergent & Acute Management of Patients Living with Duchenne Muscular Dystrophy

This presentation, "The Emergent and Acute Management of Patients Living with Duchenne Muscular Dystrophy," was produced in an effort to educate clinicians in the care of individuals and families living with Duchenne.The presentation can be…See More
Oct 19, 2016

Staff
Kathi Kinnett shared Abby Bronson's blog post on Facebook
Oct 18, 2016

Staff
Kathi Kinnett shared Pat Furlong's blog post on Facebook
Sep 19, 2016

Staff
Kathi Kinnett posted a blog post

The Importance of Early Diagnosis: Ensuring Quality Care

The global Duchenne community will come together on September 7 for World Duchenne Awareness Day. This year a theme was chosen that is not only critical to changing the diagnostic odyssey for people with Duchenne…it is a theme that the PPMD team…See More
Sep 1, 2016

Staff
Kathi Kinnett posted a blog post

PPMD Visits South Africa to Help Spread Global Knowledge of Duchenne Care

As we quickly approach World Duchenne Awareness Day, on September 7, I am pleased to provide details on our team’s ongoing trip to South Africa. Over the past 10 years, the…See More
Aug 31, 2016
Brid Murray favorited Kathi Kinnett's blog post PPMD’s #EverySingleOne Tour: Salt Lake City
Jul 19, 2016
Fred Coates commented on Kathi Kinnett's blog post A New Care Guide to Give to Your Provider – Imperatives for Duchenne Care
"This trail ended on April 30 2016, I would think it will take awhile to report, but does anyone have any insight into the results?"
Jun 13, 2016

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Salt Lake City

With a successful ESO tour stop in Baltimore under our belts, PPMD visited Salt Lake City this past weekend! There’s a special sense of camaraderie that exists when people gather in a…See More
May 26, 2016

Staff
Kathi Kinnett posted a blog post

PPMD Brings Together Experts to Assess Steroid Effects on Bone Health in Duchenne

Bone health has long been a confusing and often neglected aspect of Duchenne care. There is very little knowledge of underlying…See More
May 12, 2016
Brid Murray favorited Kathi Kinnett's blog post Recognizing the Symptoms of Fat Embolism Syndrome (FES)
Mar 19, 2016

Staff
Kathi Kinnett posted a blog post

The Importance of Every Single Breath—PPMD to Host Pulmonary Outcomes Meeting

We are well aware that changes in pulmonary function occur as Duchenne progresses. In Duchenne, respiratory muscles (including the diaphragm) weaken and it becomes more difficult to take full breaths in, fully expand the…See More
Mar 10, 2016

Comment Wall (4 comments)

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At 6:20pm on April 17, 2014, kimmy watters said…

  hi kathi its  the new drug  i have issue with spelling  eleplrin , that the fda has not approve yet.  my question is that  drug will it  help the boys that are in wheel chair. kimmy

At 6:26pm on April 16, 2014, kimmy watters said…

 hi kathi my name is kimmy watters thank you for  what  you do for parent project,. with this new drug will it  our boys who are now in wheelchair. kimmy

At 11:26pm on May 7, 2012, Thomas Hoel said…
So, were you a human GPS for Pat on the walk through the canyon?  Proud of you guys.  I'll bet you two were like Thelma and Louise, light. What an awsome accomplishmemt!!
At 10:52pm on April 4, 2012, Thomas Hoel said…
Glad to have you "officially" on board at PPMD Kathi! Your knowlege, experience, empathy and passion can help so many more families now.
 
 
 

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