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Kathi Kinnett
  • Female
  • Cincinnati, OH
  • United States
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Kathi Kinnett's Discussions

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

Started this discussion. Last reply by Tina Tsonis Oct 18, 2013. 25 Replies

If you had a chance to ask researchers, providers or industry any question at all about…Continue

Tags: questions, conference, Staff, Duchenne, researchers

 

Kathi Kinnett, Vice President, Clinical Care

Profile Information

About me:
Sr. Vice President, Clinical Care
i have been engaged with the Duchenne community for more than 20 years. I worked as a Pediatric Nurse Practioner at Cincinnati Children's Hospital with their neuromuscular team before joining PPMD. I am thrilled to be a part of this amazing communtiy and will dedicate my efforts to making sure that you and/your child are receiveing the best possible care.
About my family:
i have 2 beautiful grown daughters, 2 amazing son-in-laws, and 3 grandchildren that i treasure <3
City:
Cincinnati
State:
Ohio

Kathi Kinnett's Blog

Making Duchenne Care and Clinical Trials Better – Globally

Posted on December 5, 2017 at 11:55am 0 Comments

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.



A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure…

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PPMD’s #EverySingleOne Tour: Albuquerque, NM

Posted on November 20, 2017 at 9:00pm 0 Comments

On November 4, PPMD had the pleasure of working with the parents and providers of New Mexico to present our final Every Single One Tour stop of 2017 (click here for a…

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Steroid Dosing & Duchenne: FAQs

Posted on October 5, 2017 at 3:00pm 0 Comments

Steroid dosing in Duchenne can be a confusing topic – what is enough, what is too much, why weekend doses are higher. With these frequently asked questions I’ve heard from the community…

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In an Emergency – Consider a Medical ID

Posted on September 22, 2017 at 7:23pm 0 Comments

Let’s say that Joe has Duchenne. If Joe breaks his arm and the EMT comes before Joe’s parent arrives, Joe may not remember to tell the EMT that: 1) he has Duchenne, 2) he is on daily steroids 3) he is allergic to penicillin and, in that painful scary moment, he may or may not remember his parent’s…

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Latest Activity


Staff
Kathi Kinnett posted a blog post

Making Duchenne Care and Clinical Trials Better – Globally

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure him.A physical therapy student in Turkey who wants to learn all she can to help the…See More
Dec 5

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Albuquerque, NM

On November 4, PPMD had the pleasure of working with the parents and providers of New Mexico to present our final Every Single One Tour stop of 2017 (click here for a preview of our 2018 Tour…See More
Nov 20

Staff
Kathi Kinnett is attending PPMD's event

For Clinicians: PPMD Duchenne Clinician Care Conference at Sanibel, FL

January 24, 2018 to January 26, 2018
This year, PPMD will be hosting our first Duchenne Clinician Conference, January 24-26, 2018 at the Marriott Harbor in Sanibel, FL. Registration is now open.This conference will provide up to date clinical education, resources, materials and networking, supporting your ability to provide the very best care to your patients and families living with Duchenne.Our robust agenda will cover comprehensive care and…See More
Oct 17
brian phillip nicholoff favorited Kathi Kinnett's blog post PJ Nicholoff Steroid Protocol Published
Oct 16

Staff
Kathi Kinnett posted a blog post

Steroid Dosing & Duchenne: FAQs

Steroid dosing in Duchenne can be a confusing topic – what is enough, what is too much, why weekend doses are higher. With these frequently asked questions I’ve heard from the community in mind, I reached out for…See More
Oct 5
Mariana Mitreva favorited Kathi Kinnett's blog post Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol"
Oct 4

Staff
Kathi Kinnett posted a blog post

In an Emergency – Consider a Medical ID

Let’s say that Joe has Duchenne. If Joe breaks his arm and the EMT comes before Joe’s parent arrives, Joe may not remember to tell the EMT that: 1) he has Duchenne, 2) he is on daily steroids 3) he is allergic to penicillin and, in that painful scary moment, he may or may not remember his parent’s cell phone…See More
Sep 22

Staff
Kathi Kinnett posted a blog post

2017/2018 Flu Vaccination Recommendations

Everyone, six months of age and older, needs to be vaccinated against influenza (flu) by the end of October, if possible. Protecting people living with Duchenne is especially important. A 2005 study…See More
Sep 18

Staff
Kathi Kinnett posted a blog post

PPMD’s #EverySingleOne Tour: Charleston, WV

We kicked off our fall Every Single One Tour stops in West Virginia this past weekend! We appreciate all of the families, speakers, and volunteers that spent the day with us in Charleston. Psychosocial Issues in Duchenne…See More
Sep 13

Staff
Kathi Kinnett commented on Kathi Kinnett's blog post Important New Duchenne Steroid Protocol: Download the "PJ Nicholoff Steroid Protocol"
"Tia - a stress dose of steroids, if your son had been using daily steroids for more than 2 weeks, would absolutely have been advised.  However, this sounds like the sysmptoms of a fat embolism.when-parents-are-informed.  When patients have…"
Sep 11

Staff
Kathi Kinnett posted a blog post

Care Complications – Going Beyond the More Common Elements of Care in Duchenne

Every year at PPMD's Annual Connect Conference, we try to put together the best topics, with the most informed speakers, to address elements of care at different ages. This year,…See More
Aug 28

Staff
Kathi Kinnett posted a blog post

PPMD's Bone Health Workshop Published

May 12-13, 2016, PPMD convened a workshop of 48 opinion leaders, research experts and clinicians from the US and Canada, on the subject of Duchenne and bone biology. Bone health has long been a confusing and often neglected…See More
Aug 14

Staff
Kathi Kinnett posted blog posts
Jul 17

Staff
Kathi Kinnett posted a blog post

Finding Your Light: Fighting Depression in Duchenne

PPMD's Kathi Kinnett, MSN, CNP worked with Molly Colvin, PhD, Neuropsychologist at Massachusetts General Hospital and Ginny Ward, an amazing mom living in Colorado with her children, including John, a young man living with Duchenne, to develop this important material. Life is hard, and parts of life are really, really…See More
May 25

Staff
Kathi Kinnett posted a blog post

PPMD Convenes Meeting to Explore the Burden of Pediatric Clinical Trials

The Duchenne community has waited 20 years to be where we are. We are reminded daily of how far we have come, how the landscape has changed, how there are close to 20 clinical trials to choose from. While these changes within are landscape bring us to a hopeful time in Duchenne, the journey to this point has not been…See More
Apr 20
Brid Murray favorited Kathi Kinnett's blog post Duchenne Carrier Study at Nationwide Children’s Hospital
Feb 24

Comment Wall (4 comments)

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At 6:20pm on April 17, 2014, kimmy watters said…

  hi kathi its  the new drug  i have issue with spelling  eleplrin , that the fda has not approve yet.  my question is that  drug will it  help the boys that are in wheel chair. kimmy

At 6:26pm on April 16, 2014, kimmy watters said…

 hi kathi my name is kimmy watters thank you for  what  you do for parent project,. with this new drug will it  our boys who are now in wheelchair. kimmy

At 11:26pm on May 7, 2012, Thomas Hoel said…
So, were you a human GPS for Pat on the walk through the canyon?  Proud of you guys.  I'll bet you two were like Thelma and Louise, light. What an awsome accomplishmemt!!
At 10:52pm on April 4, 2012, Thomas Hoel said…
Glad to have you "officially" on board at PPMD Kathi! Your knowlege, experience, empathy and passion can help so many more families now.
 
 
 

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