If you had a chance to ask researchers, providers or industry any question at all about…Continue
An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.
A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure…Continue
Let’s say that Joe has Duchenne. If Joe breaks his arm and the EMT comes before Joe’s parent arrives, Joe may not remember to tell the EMT that: 1) he has Duchenne, 2) he is on daily steroids 3) he is allergic to penicillin and, in that painful scary moment, he may or may not remember his parent’s…Continue