Kathi Kinnett
  • Female
  • Cincinnati, OH
  • United States
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Kathi Kinnett's Discussions

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

Started this discussion. Last reply by Tina Tsonis Oct 18, 2013. 25 Replies

If you had a chance to ask researchers, providers or industry any question at all about…Continue

Tags: questions, conference, Staff, Duchenne, researchers


Kathi Kinnett, Vice President, Clinical Care

Profile Information

About me:
Sr. Vice President, Clinical Care
i have been engaged with the Duchenne community for more than 20 years. I worked as a Pediatric Nurse Practioner at Cincinnati Children's Hospital with their neuromuscular team before joining PPMD. I am thrilled to be a part of this amazing communtiy and will dedicate my efforts to making sure that you and/your child are receiveing the best possible care.
About my family:
i have 2 beautiful grown daughters, 2 amazing son-in-laws, and 3 grandchildren that i treasure <3

Kathi Kinnett's Blog

PPMD & NIH to Host “Contractures in Duchenne and Other Neuromuscular Conditions”

Posted on April 19, 2018 at 9:30am 0 Comments


PPMD and NIH are convening a group of more than 60 researchers, post-docs, neurologists, surgeons, industry partners, physiatrists, and physical therapists on April 19-20, 2018, who have experience and expertise in the development, prevention, and management of contractures to discuss these critical issues. 

We just don’t know very much about…


Why is Bone Health Important?

Posted on April 11, 2018 at 9:30am 0 Comments

Just like a house needs a stable frame, your body needs a stable skeleton. Bone health is important for anyone living with Duchenne, whether walking (ambulatory) or those no longer able to walk without the assistance of a wheelchair or scooter (non-ambulatory). People of all ages living with Duchenne have weak bones, especially if they are taking steroids…


Center Directors Publish Collective Statement Regarding Patient Access to Approved Therapies

Posted on March 27, 2018 at 9:00am 0 Comments

PPMD is proud to announce the publication of a collective statement regarding patient access to approved therapies from the center directors of our Certified Duchenne Care Centers.

There are many ongoing treatment trials for Duchenne and of…


Duchenne Pulmonary Awareness Video Series

Posted on March 13, 2018 at 9:30am 0 Comments

Pulmonary management in Duchenne (all of the care involved with breathing and coughing) can be confusing and difficult to understand. There are many terms, abbreviations, and procedures that all sound very complicated. PPMD – with support from Santhera Pharmaceuticals and input from a panel of parents,…


Comment Wall (4 comments)

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At 6:20pm on April 17, 2014, kimmy watters said…

  hi kathi its  the new drug  i have issue with spelling  eleplrin , that the fda has not approve yet.  my question is that  drug will it  help the boys that are in wheel chair. kimmy

At 6:26pm on April 16, 2014, kimmy watters said…

 hi kathi my name is kimmy watters thank you for  what  you do for parent project,. with this new drug will it  our boys who are now in wheelchair. kimmy

At 11:26pm on May 7, 2012, Thomas Hoel said…
So, were you a human GPS for Pat on the walk through the canyon?  Proud of you guys.  I'll bet you two were like Thelma and Louise, light. What an awsome accomplishmemt!!
At 10:52pm on April 4, 2012, Thomas Hoel said…
Glad to have you "officially" on board at PPMD Kathi! Your knowlege, experience, empathy and passion can help so many more families now.

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