Kassidy
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Need Information, Please Help!!!

Started this discussion. Last reply by Sam Ibrahim Dec 10, 2009. 11 Replies

I am a college student in Houston, TX. I am writing a research paper on DMD and part of our assignment is to get information from either a patient with the disorder or a family member. I hope to be…Continue

 

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About me:
I am a college student in Houston, TX. I am writing a research paper on DMD and part of our assignment is to get information from either a patient with the disorder or a family member. I hope to be attending graduate school for Physical Therapy soon, and possibly in the end become a pediatric therapist. This is why i chose this topic for my paper. Personally i dont know of anyone with this type of disorder, so when i saw this website, i was hoping someone here would be willing to help me out!
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Katy TX

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At 8:09pm on November 22, 2009, christine good said…
I think that the #1 thing folks dont realize is that our boys are not only dealing with a muscle disorder, but also a behavioral one too. I was told for many years that Kian was autistic and was on the wrong road for too long. Kian has a hard time making and keeping friends. He is on timeout alot at home and we all walk on eggshells. DMD is a heartbreaker in itself, but its the behavioral issues that take the most out of our quality of life.
At 10:55pm on November 19, 2009, sheela mary said…
hi,
i saw u r mail.i m also dng my project regarding DMD.my brother had DMD.if u need more information visit muscular dystrophy association us, duchenne connect.if u need some more info send mail to me.my id shylmary@rediffmail.com
At 8:33pm on November 19, 2009, christine good said…
Hi,
I am a PTA who's son has DMD. He is 9. I would be glad to answer any ??

Christine Good
At 1:50pm on November 19, 2009, Danelle Dickerson said…
What info are you looking for? What DMD is technically? How if affects our boys daily? How it affects our families? If you post this question under the discussion forum, you are likely to get alot of responses. Hope this helps!
Danelle
At 9:38am on November 19, 2009, Theresa Hennigan said…
Hi Cassidy, welcome to the group
 
 
 

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