I am a college student in Houston, TX. I am writing a research paper on DMD and part of our assignment is to get information from either a patient with the disorder or a family member. I hope to be…Continue
I am a college student in Houston, TX. I am writing a research paper on DMD and part of our assignment is to get information from either a patient with the disorder or a family member. I hope to be attending graduate school for Physical Therapy soon, and possibly in the end become a pediatric therapist. This is why i chose this topic for my paper. Personally i dont know of anyone with this type of disorder, so when i saw this website, i was hoping someone here would be willing to help me out!
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I think that the #1 thing folks dont realize is that our boys are not only dealing with a muscle disorder, but also a behavioral one too. I was told for many years that Kian was autistic and was on the wrong road for too long. Kian has a hard time making and keeping friends. He is on timeout alot at home and we all walk on eggshells. DMD is a heartbreaker in itself, but its the behavioral issues that take the most out of our quality of life.
i saw u r mail.i m also dng my project regarding DMD.my brother had DMD.if u need more information visit muscular dystrophy association us, duchenne connect.if u need some more info send mail to me.my id firstname.lastname@example.org
What info are you looking for? What DMD is technically? How if affects our boys daily? How it affects our families? If you post this question under the discussion forum, you are likely to get alot of responses. Hope this helps!